Mariposa n. 17
During 2016 LCCF of “Sister Dalila” and NGO “Pulmonary Hypertension Ukrainian Rare Disease Association” (PHURDA) organized the a lot of activities. The most remarkable are the following:
Mariposa n. 16
To mark WPHD 2016, over 400 children ran in a “Get breathless for PH” race supported by Miss Lviv 2016. The runners all wore “Get Breathless for PH” t-shirts to
Mariposa n. 15
In 2015 the LCCF “Sister Dalila”& PHURDA carried out a number of activities aimed at supporting PH patients and protecting their rights. We organized a flashmob involving children, to support
Mariposa n. 14
The region of Lviv, Ukraine, welcomed WPHD supporters to its streets in May for a special walk through the city entitled “Hodoton”, organised by the PH charity foundation “Sister Dalila”.
WPHD 2022
This year, celebration of World PH Day was a real challenge. In Ukraine to the previous problems with Covid 19 there was added a war. Our patients ended up in
WPHD 2021
On May 5, as a part of WPHD 2021, a session of psychological rehabilitation took place. It was a long-awaited and family-friendly meeting. This is a new format, which is
WPHD 2020
This whole situation with Covid-19 has forced us to move the celebration of World PH Day to an online format. We launched a photo/video flash mob on social networks.
WPHD 2019
This year, we celebrated WPHD in several stages. On May 4, we, patients and volunteers took part in a city-wide march on the occasion of City Day. Our column was
WPHD 2018
This WPHD we celebrated together with PHA Norway. Welcoming speech was from the Ambassador of Norway to Ukraine. Than we heard short presentations from PHA Europe president Hall Skåra and
WPHD 2017
We held a unique event – fashion show of a clothing collection created by Ukrainian designers for people with pulmonary hypertension. On this day, 20 models, aged from 3 to
WPHD 2016
We held activities in the park “Horihovyi Hai”. Oksana Kulish, Andrii Porodko, Juan Fuertes, Yuriy Pidlisny (deputy governor of Lviv region), Head of the “Miss Lviv-2016” Contest solemnly opened the
WPHD 2015
Patients from Lviv, Lviv regiont and Kyiv gathered to celebrate World PH Day. Among them: Victoria Burbura, Khrystyna Makarchuk, Olena Pokotylo, Iryna Sydorchuk, Alina Didusenko, Victoria Folis, Svitlana Malanchak, Artem
WPHD 2014
The first celebration of World Pulmonary Hypertension Day in Lviv. Flash mob near the Lviv City Council.
Rare Disease Day 2021
A round table dedicated to the problems of orphan patients in the Lviv region, initiated by “Orphan Bell”, was held at Lviv Regional Council building.
Rare Disease Day 2020
In 2020 on February 28th at Lviv Regional State Administration the orphan community in Lviv organized round table “Rare Disease Day”.
Tetyana Ivashchenko
Autumn is always generous… It is generous for fruit and vegetables, which we have been waiting for all summer. Autumn is rich in mushrooms and other gifts of nature. We
Halyna Bezenko
Halyna Bezenko (75) already knows well what it means to fight for life. She knows what it’s like to pad the thresholds of hospitals, hear disappointing diagnoses, and continue to
Larisa Kucheryavenko
Larisa Kucheryavenko, born in 1969 from the city of Kryvyi Rih joins our organization so as not to be alone in the fight against the disease. A woman’s life depends
Nadiya Boyko
Nadiya Boyko, 1983. from the village Dmytriv, Radekhiv district, Lviv region. Diagnosis: chronic postembolic pulmonary hypertension, which requires permanent and long-term екуфеьуте, as well as significant funds.