About PH
Pulmonary hypertension (PH) is the broad, inclusive name for a group of several chronic diseases that affect the lungs and the heart.
WorldPHDay
Around the world World PH Day activities are held to raise awareness of disease and celebrate the lives of people living with PH.
Butterfly in Blue
The “Butterfly in Blue” project shows the problem of pulmonary hypertension through the prism of beauty.
One of our main goals is to spread the information about PH to facilitate early diagnosis. It also helps for the wider community to better understand the difficulties PH patients are living with in their everyday life.
We participate in a great number of projects, partnerships, working groups and various task forces with the aim of ensuring better quality of life for the patients, best treatment and ultimately a cure for PH.
We share novelties and recommendations in PH treatment, together we solve problems and overcome difficulties.
Comprehensive rehabilitation is the key to a full and better quality of life.
Vaccination is especially important for patients with pulmonary hypertension
Vaccination is especially important for patients with pulmonary hypertension for several reasons: Reduced risk of
Transplantation in Ukraine and its challenges
Doctors working in war conditions not only saved the wounded, but also made a significant
CF Sister Dalila with the support from EURORDIS managed to purchase oxygen concentrators
Thanks to the support of EURORDIS-Rare Diseases Europe, portable oxygen concentrators “Inogen Rove 6” were
