Privacy Policy

Who we are

CF “Sister Dalila” and Pulmonary Hypertension Ukrainian Rare Disease Association (PHURDA) are committed to protecting your personal data irrespective of whether you provide us with them online or in a written form. From this Privacy Policy, you can learn how your personal data is processed by CF “Sister Dalila”, PHURDA, as well as what types of rights you have in accordance with the Law of Ukraine on the Protection of Personal Data. Our website address:

Website information use

Any and all materials, information and data (including, but not limited to: news, photos, images, artworks, audio and video clips, hereinafter referred to as “Materials”) published on the pages of the web-site are for informational purposes only.

Texts of the news published on the pages of the “News and events” section may be used, reproduced or copied without violation of their integrity, editing or misrepresentation their content, with a mandatory reference to the source published at Publishing active links to such Material without direct reproduction of their content in other media is allowed.

It is prohibited to use (duplicate, disseminate, change, etc.) any Material published on the website in any manner for the purpose of distortion of any actual circumstances or events, promotion or incitement of religious, race or interethnic hatred, calling for a violent coup or overthrow of the constitutional system or seizure of the state power, calling for changing administrative boundaries or the state border of Ukraine, breach of order, established by the Constitution of Ukraine, calls for riots, arson, property destruction, takeover of buildings and structures, expulsion of citizens, calls for aggression or initiation of military conflicts.


All Material published on this website is copyrighted under the laws of Ukraine and international copyright and remains in the ownership and use of the CF “Sister Dalila” PHURDA or the party being the supplier of the Material.

Use of cookie files

A cookie is a text file or files containing a small amount of information that are sent to a web browser and stored on the user’s device. Such devices can include a computer, mobile phone or other device with which the user visits the Site.

Cookie contains information about your visit that your browser uses to personalize certain pages or elements. For statistical analysis purposes, a cookie may also be used to pass a randomly generated and anonymous unique number to our servers. Cookies cannot be used by themselves to identify you. A cookie will typically contain the name of the domain from which the cookie has come, as well as the lifetime and expiration of the cookie, and a value, usually a text value or a randomly generated unique number.

If you do not wish to receive cookies, you can easily modify your browser to reject all cookies or to notify you whenever one is about to be placed on your computer. However, if cookies are not accepted you may not be able to experience all the interactive features of the website. You are therefore encouraged to allow cookies in order to fully enjoy this website’s features.

Most web servers, including CF “Sister Dalila”, PHURDA ones, use log files, which record information such as service provider IP addresses, browser brand and version, referring websites, search terms used, average number of requested pages, average visit duration, total visitor traffic and information gathered for aggregate use. This information can in no way be used to track or identify any individual users or to conduct analytical data processing. CF “Sister Dalila”, PHURDA will use such data for debugging purposes.

What personal information is processed about you?

The type and amount of information processed by the CF “Sister Dalila” and PHURDA depends on how you use the resources and services provided by the CF “Sister Dalila”, PHURDA. You can access most of the CF “Sister Dalila” and PHURDA pages without stating who you are or revealing any personal information, however, in order to access the internal mailing list, information that is considered personal may be collected from you.

CF “Sister Dalila” and PHURDA do not collect personally identifiable information (such as your name, address, phone number, or email address) unless voluntarily disclosed. However, please note that you may be asked to provide personal information in order to comply with applicable law or to receive any services provided by CF “Sister Dalila” and PHURDA. Once you do not provide information upon request, CF “Sister Dalila” and PHURDA may refuse to provide a certain service or provide it only with some limitations.

There are other instances when CF “Sister Dalila” and PHURDA request personally identifiable information for the purpose of providing you with specific services or of corresponding with you. Information that you supply in this way will not be shared with any third party except where needed to provide a requested service or required by law.

If you register for a newsletter, log on CF “Sister Dalila” and PHURDA website, request information, provide feedback, attend an online course, join a discussion group, or join an electronic mailing list or newsletter, or request assistance of CF “Sister Dalila”, PHURDA, to attend face to face meeting, general assembly or any other meeting where your travel needs to be arranged, you may be asked to provide personal information such as your:

  • name, surname, patronymic
  • date of birth
  • name of mother/father/husband/wife
  • identification number or a photocopy of the identification code
  • bank account number
  • mailing address
  • email address

This information is collected only with your knowledge and permission and is stored in various databases and mailing lists of CF “Sister Dalila” and PHURDA. If you are purchasing or donating something through the CF “Sister Dalila”, PHURDA website, you may be asked to provide your credit card credentials. These details are transferred to a secure third-party online payment service provider, CF “Sister Dalila “and PHURDA will nor have access, neither will retain, manage, store, host or process such information.

How your information is used?

CF “Sister Dalila” and PHURDA do not distribute, sell, make available or grant access to the user information to third parties, unless it is required by applicable law, or needed to improve CF “Sister Dalila” and PHURDA’s understanding of web visitors, to send information that you have requested or that may be considered of interest to you and to render services you have asked for.

With whom may we share the information?

CF “Sister Dalila” and PHURDA will not disclose any information identifying you personally, except with your prior explicit permission, to service providers to render the service you requested or where required by applicable law.

Rights you have related to data processing

At any time, you can amendor even ask the erase of your information by contacting us at You can also at any time check the data handled by CF “Sister Dalila” and PHURDA by contacting us.

How do we protect your personal information?

CF “Sister Dalila” and PHURDA endeavors to ensure high level of protection of your personal information you provide with us. However, it cannot guarantee that submitting information over the Internet is completely secure and data are not compromised. As a result, CF “Sister Dalila” and PHURDA do not confirm or warrant the security of personal information submitted; you do so at your own risk.

By giving his/her Consent to CF “Sister Dalila”, PHURDA, a user acknowledges and guarantees that he/she is aware of and understands the rights provided by the Law of Ukraine “On Personal Data Protection”, objective of processing of the indicated personal data, and he/she doesn’t require that the CF “Sister Dalila”, PHURDA give notices on transfer of the personal data to any third parties according to the requirements of Article 21 of the Law of Ukraine “On Personal Data Protection”.


CF “Sister Dalila” and PHURDA shall not be liable for any eventual consequences of use by a user or visitor of the web-site of any Material published on the website.

The information contained on this Website is for general use only. Please consult your healthcare professional if you think you may have pulmonary hypertension. CF “Sister Dalila”, PHURDA and its content suppliers cannot be held responsible for any action taken as a result of viewing or downloading any material on this Website.