Children from PH Community have got presents from St. Nicholas
This year, St. Nicholas the Wonderworker, through his mediators on earth, congratulated the children of the community of Charitable Foundation “Sister Dalila”, Pulmonary Hypertension Association with generous gifts. Children’s joy,
Transplantation in Ukraine and its challenges
Doctors working in war conditions not only saved the wounded, but also made a significant contribution to the development of transplantation in Ukraine.This is in addition to the importance of
CF Sister Dalila with the support from EURORDIS managed to purchase oxygen concentrators
Thanks to the support of EURORDIS-Rare Diseases Europe, portable oxygen concentrators “Inogen Rove 6” were purchased for people with a rare disease – pulmonary hypertension in Ukraine, who need oxygen
Vaccination is especially important for patients with pulmonary hypertension
Vaccination is especially important for patients with pulmonary hypertension for several reasons: Reduced risk of complications: Pulmonary hypertension already makes the lungs less able to work properly, which can lead
PVRI developed a survey to understand the living of PH patients better
Everyone wants to be heard! Especially a person with pulmonary hypertension (PH). Especially now. Especially in Ukraine. It’s time to be heard! PVRI created a survey for people with ADHD, caregivers, and
Success on Fundraising activity
Dear friends! We report on the success of the fundraising activity, which was announced by sister Dalila on the occasion of her 50th anniversary. 7,000 UAH was received to the
Mental health
Mental health is our greatest wealth, and it needs the same attention as physical health. Our ability to talk freely about our emotions and the state of our mental health
November is PH awareness month
Is there life after getting a diagnosis “pulmonary hypertension”? – Yes, there is. But which quality of life will be depends on the patient himself. It is important to understand
Dimitris Kontopidis has become a new ELF chair
The European Lung Foundation has a new president and this is Dimitris Kontopidis, a patient and vice-president of the European Cystic Fibrosis Association (Cystic Fibrosis Europe). In 2021, Dimitris received
IRC’s Сall to advance global lung health
On #WoldLungDay 2023, Chairman of the International Respiratory Coalition (IRC), Guy Joos, a timely reminder and response to the IRC’s call to advance global lung health. According to the topic
World Lung Day
Today is The World Lung Day – Pulmonary Hypertension Europe represents patients with PC throughout Europe. On The World Lung Day, it is important to reflect on the the value
We are grateful to Kjeld Hansen for cooperation and support!
“Kjeld Hansen, during your two years as ELF chair and my membership, the ELF Council managed to do what was planned. New projects, conferences are ahead, I am grateful to
PH Community lost a friend
Unspeakable pain and sadness surrounds the loss of Mira Dziubinska. This feeling as if a part of us is gone. You were an example for us. You worked a lot,
We express our sincere grattitude to Ioanna Pepke Zaba for support.
It`s a great pleasure to meet friends who since the first days of war have been helping us to withstand in the fight. Ioanna Pepke Zaba (in partnership with PRVI)
CF “Sister Dalila” provides humanitarian aid to PH patients
Thanks to the support of our partners and friends, we provide essential medicines, thermoses for people with a rare disease – pulmonary hypertension, baby diapers, and sleeping bags for the