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Pulmonary Hypertension Ukrainian Rare Disease Association - PHURDA CF Sister Dalila

CF Sister Dalila

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Find a local specialist
  • Українська
  • Русский
  • English
  •  
  • About us
    • Our history
    • Mission, vision, aims
    • Our team
    • Our membership
    • Our awards
    • Our partners
    • Founding documents
    • Activity reports
      • CF “Sister Dalila”
      • PHURDA
  • CF “Sister Dalila”
    • They need help
    • You helped them
    • We remember them
    • How to help
    • To become a ward
    • Successful stories
  • About PH
    • Classification and WHO functional class
    • What is PAH?
    • What is CTEPH?
    • Symptoms
    • Diagnosis
    • Treatment
    • Therapies
    • ESC/ERS Guidelines
    • Research
    • PH in children
    • PH and pregnancy
  • Get involved
    • Volunteering
    • Awareness campaigns
      • World PH Day
      • PH Awareness month
      • Rare Disease Day
      • Donor Day
      • Previous campaigns/activities
        • Early diagnosis
        • Music for life
    • Advocacy work
      • Expert groups at Ministry of Health
      • Legal support
      • Round tables
    • My PH Library
  • Projects
    • Butterfly in Blue
      • Fashion show
      • Beauty salon
    • Cork for Life
    • O2Kids
    • St. Nicolas Day
    • For coffee
    • Charity Shop
    • Rehabilitation program
    • Fundraising projects
  • News and events
    • Conferences
      • First patient meeting
      • Christmas debates
      • 5 years of activity
    • Mariposa Journal
    • News
    • Support groups for PH patients
  • Contact Us
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CF “Sister Dalila” is on the “Charity Map”
News 4 November 2019

CF “Sister Dalila” is on the “Charity Map”

We are happy to announce that CF “Sister Dalila”on a yearly basis is on the “Charity Map” among charitable organizations that have publicly released their tax reports, which promotes the
Read more
I have a question to the Ministry of Finance of Ukraine
News 2 November 2019

I have a question to the Ministry of Finance of Ukraine

I have a question to the Ministry of Finance of Ukraine, Ms. Minister Oksana Markarova why in 2020, because of your actions, can I be left without medicine?Why are you
Read more
We have participated in the next session of the rehabilitation program
News 30 October 2019

We have participated in the next session of the rehabilitation program

Today we have participated in the next session of the rehabilitation program. Tetiana Smirnova helped us with physical exercises, followed the correct excercising, gave attention to everyone. Adrian Cuzan’s trusted
Read more
Dear PH patients)
News 30 October 2019

Dear PH patients)

Dear PH patients) On October 30th we are waiting for you at Anna Mazurenko Children’s health cetre to continue our rehab program. Agenda is the same: 11.00 – 12.30 –
Read more
Conference of the Ukrainian Philanthropists Forum – 2020
News 26 October 2019

Conference of the Ukrainian Philanthropists Forum – 2020

Conference of the Ukrainian Philanthropists Forum – 202024.10 at the cozy Creative Women Space in KyivThe Ukrainian Philanthropists Forum team gathered representatives from the charity sector to hear wishes to
Read more
About the eco-project “Cork of Life” … in Kamianets-Podilskyi
News 26 October 2019

About the eco-project “Cork of Life” … in Kamianets-Podilskyi

About the eco-project “Cork of Life” … in Kamianets-Podilskyi Today a meeting with students and teachers took place in the native Faculty of Natural Sciences.Presentation of an indefinite charity event
Read more
the Pediatric Committee of the European Medicines Agency made positive decisions
News 21 October 2019

the Pediatric Committee of the European Medicines Agency made positive decisions

In September, the Pediatric Committee of the European Medicines Agency made positive decisions on plans for a study in pediatric medicine, including Sildenafil Citrate (EMEA-C-000671-PIP01-09-M10) from Pfizer Limited, for the
Read more
The results of the meeting of the Health Commission of Public Council at LODA
News 21 October 2019

The results of the meeting of the Health Commission of Public Council at LODA

According to the results of the meeting of the Health Commission of Public Council at LODA 10.10, an appeal was prepared and registered by the Public Council at the Lviv
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On November 01 @ CF “Sister Dalila” together with the Ukrainian Philanthropists Forum will host a webinar
News 21 October 2019

On November 01 @ CF “Sister Dalila” together with the Ukrainian Philanthropists Forum will host a webinar

On November 01 @ CF “Sister Dalila” together with the Ukrainian Philanthropists Forum will host a webinar “How can NGOs can rent on preferential terms?” On the ISAR UNIT platform.
Read more
When will the organ transplant system work in Ukraine? Questions without answer
News 21 October 2019

When will the organ transplant system work in Ukraine? Questions without answer

When will the organ transplant system work in Ukraine? More is on the news of Channel 5 https://www.youtube.com/watch?v=E_a3rAjdV0U&fbclid=IwAR0Ot21zfCtwnaRr7UDpSxwITETYjKR3HUmpeqaQpylBvpsRuY3m2f3sVTQ
Read more
We now have pretty gray tables and bedside tables and comfortable office chairs
News 17 October 2019

We now have pretty gray tables and bedside tables and comfortable office chairs

Now we have nice  gray tables and bedside tables and comfortable office chairs
Read more
Our dear Tania Mykolaivna passed away
News 17 October 2019

Our dear Tania Mykolaivna passed away

Our dear Tania Mykolaivna passed away. Kind, sincere, responsive friend, wife, mom, daughter. She has always did her best to help others, inspired by her perseverance, hard work, and activity.
Read more
Alla Honcharuk
They need help 10 October 2019

Alla Honcharuk

Honcharuk Alla Leonidivna is from Iziaslav, where she lives today. Woman is 54 years old. She has been suffering since 2012. During this time she was examined in many clinics.
Read more
Shuplat Andrew
They need help 10 October 2019

Shuplat Andrew

Shuplat Andrew is a young man who has a whole life ahead of him. However, since an early age, he faced adult problems. The largest of them is pulmonary hypertension.
Read more
Andrusyk Ihor
They need help 10 October 2019

Andrusyk Ihor

Andrusyk Ihor Bohdanovych, 9 years old. He is still a child, but has already faced serious problems. Diagnosis: congenital heart disease. Eisenmengera Complex. Wide open arterial duct. CH And Art.
Read more
Сongratulations the Head of the “Sister Dalila” Charitable Foundation
News 6 October 2019

Сongratulations the Head of the “Sister Dalila” Charitable Foundation

Сongratulations to Oksana Kulish, the Head of the “Sister Dalila” Charitable Foundation, and the Butterfly in blue project with the successful participation in the “Best Women initiatives in Democratic Development
Read more
Deadly danger: the state will save for 35%, and then help yourself
News 6 October 2019

Deadly danger: the state will save for 35%, and then help yourself

Deadly danger: the state will save for 35%, and then help yourself https://dilo.net.ua/zdorovya/smertelna-nebezpeka-derzhava-vryatuye-vas-na-35-a-dali-dopomozhit-sobi-sami/?fbclid=IwAR2xlVI1IhjzzeH3N0uaqofWB8RPCfNfEJTukNsV3RGeID4y_eMvyPrZmgc  
Read more
Everyone has right for life
News 6 October 2019

Everyone has right for life

Everyone has right for life. We are against the balancing of the State Budget for 2020 at the expense of treatment for patients with rare diseases, pulmonary hypertension. We are
Read more
#BOTTOM, or what will happen to orphan patients in 2020?
News 6 October 2019

#BOTTOM, or what will happen to orphan patients in 2020?

The draft of budget 2020 left thousands of patients with rare and chronic diseases without reatment. -The briefing showed how humiliating for patients is the position of those who had cut
Read more
# Bottom of an empty can from medicines
News 6 October 2019

# Bottom of an empty can from medicines

# Bottom of an empty can of medicines. This is what patients with rare diseases, pulmonary hypertension in Ukraine can see in 2020, due to double reduction of funding for
Read more
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Transplantation in Ukraine and its challenges

Transplantation in Ukraine and its challenges

News 20 November 2023
CF Sister Dalila with the support from EURORDIS managed to purchase oxygen concentrators

CF Sister Dalila with the support from EURORDIS managed to purchase oxygen concentrators

News 14 November 2023
PHURDA took part in the Annual Pulmonary Hypertension European Conference

PHURDA took part in the Annual Pulmonary Hypertension European Conference

News 14 November 2023

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