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CF Sister Dalila

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Pulmonary Hypertension Ukrainian Rare Disease Association - PHURDA CF Sister Dalila

CF Sister Dalila

+38 097 151 09 01
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Find a local specialist
  • Українська
  • Русский
  • English
  •  
  • About us
    • Our history
    • Mission, vision, aims
    • Our team
    • Our membership
    • Our awards
    • Our partners
    • Founding documents
    • Activity reports
      • CF “Sister Dalila”
      • PHURDA
  • CF “Sister Dalila”
    • They need help
    • You helped them
    • We remember them
    • How to help
    • To become a ward
    • Successful stories
  • About PH
    • Classification and WHO functional class
    • What is PAH?
    • What is CTEPH?
    • Symptoms
    • Diagnosis
    • Treatment
    • Therapies
    • ESC/ERS Guidelines
    • Research
    • PH in children
    • PH and pregnancy
  • Get involved
    • Volunteering
    • Awareness campaigns
      • World PH Day
      • PH Awareness month
      • Rare Disease Day
      • Donor Day
      • Previous campaigns/activities
        • Early diagnosis
        • Music for life
    • Advocacy work
      • Expert groups at Ministry of Health
      • Legal support
      • Round tables
    • My PH Library
  • Projects
    • Butterfly in Blue
      • Fashion show
      • Beauty salon
    • Cork for Life
    • O2Kids
    • St. Nicolas Day
    • For coffee
    • Charity Shop
    • Rehabilitation program
    • Fundraising projects
  • News and events
    • Conferences
      • First patient meeting
      • Christmas debates
      • 5 years of activity
    • Mariposa Journal
    • News
    • Support groups for PH patients
  • Contact Us
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Thank you, dear benefactors, for your support in the nationwide fundraising for accommodation and meals for Alina Didusenko in Chennai (India) for the time before and after transplantation
News 11 December 2016

Thank you, dear benefactors, for your support in the nationwide fundraising for accommodation and meals for Alina Didusenko in Chennai (India) for the time before and after transplantation

Thanks to you we were able to raise 47000 UAH on the account of “Sister Dalila” and transfer it to the guardian – Natalia Gordienko. In currency: 47000 UAH. –
Read more
Support our little Ukrainian girl at European photo competition!!!
News 11 December 2016

Support our little Ukrainian girl at European photo competition!!!

Your vote could be decisive! Vote here: http://www.eurordis.org/photo-contest#view=gallery&for=f_XF4OD172s
Read more
Norwegian diaspora helps patients with pulmonary hypertension
News 11 December 2016

Norwegian diaspora helps patients with pulmonary hypertension

We express our gratitude to you, our dear!!! We appreciate your concern, it’s really nice to feel the support despite the distance! We remind you that we are continuing to
Read more
The “Cup of Coffee” project and meeting of Lesik from DZIDZ’off (Oleg Turko) with Ulyana Malofiy and little Vladyslav (8 years)
News 11 December 2016

The “Cup of Coffee” project and meeting of Lesik from DZIDZ’off (Oleg Turko) with Ulyana Malofiy and little Vladyslav (8 years)

Vladyslav really dreamed about this meeting and he finally got it. During the meeting Lesik said that when he was 2 years old he started playing the flute, 4 years
Read more
The “Cup of Coffee” and moving meeting of football team captain – Igor Khudobyak and the little fan – Lukian (5 years)
News 10 December 2016

The “Cup of Coffee” and moving meeting of football team captain – Igor Khudobyak and the little fan – Lukian (5 years)

Lukian was looking forward to meeting with Igor Khudobyak as he likes and plays football. The boy came to the meeting with his mother – Olga Medvid and soccer ball.
Read more
Information center of FC “Karpaty” about meeting of the Captain Igor Khudobyak with a little fan within the charity project “The Cup of Coffee”
News 10 December 2016

Information center of FC “Karpaty” about meeting of the Captain Igor Khudobyak with a little fan within the charity project “The Cup of Coffee”

“I have only positive feelings about this meeting, the boy is very funny. In December he turns 6 years, he only started going to football section. He walks to school
Read more
Work visit of the Representative of “Sister Dalila», PHURDA in Norway
News 10 December 2016

Work visit of the Representative of “Sister Dalila», PHURDA in Norway

Happy to share with you impressions of the visit to Norway at the invitation of Head of the Norwegian PH Association – Hall Skåra. The head of the Norwegian PH
Read more
Representative of “Sister Dalila», PHURDA was able to visit Complex health care resort (Rehabilitation Center) for patients with heart disease and lung in Norway
News 10 December 2016

Representative of “Sister Dalila», PHURDA was able to visit Complex health care resort (Rehabilitation Center) for patients with heart disease and lung in Norway

Rehabilitation Center is located in Eidsvoll. It is financed through state and the Norwegian Association of Heart and Lungs. This 3-floor building has it all. If necessary provision of treatment,
Read more
Ukrainians, help our compatriot to get into the top 10 of European photo competition!!!
News 9 December 2016

Ukrainians, help our compatriot to get into the top 10 of European photo competition!!!

Ukrainians, help our compatriot to get into the top 10!!! Pulmonary hypertension has chosen me without asking! With that name and photo Khrystyna Makarchuk (mother Svetlana Makarchuk) represents Ukraine  at
Read more
The “Cup of Coffee” project and the meeting of Viktor Vinnik (lead singer of “Mary”) with Tatiana Matychak from Kyiv
News 9 December 2016

The “Cup of Coffee” project and the meeting of Viktor Vinnik (lead singer of “Mary”) with Tatiana Matychak from Kyiv

Matychak Tatiana, participant of the “Cup of Coffee” project, shared her feelings on the meeting with Viktor Vinnik (lead singer of the band “Mary”): “I am grateful to Victor for
Read more
The project “Early diagnosis of pulmonary hypertension in Lviv region” once again tells residents of the city about pulmonary hypertension issues and the importance of early diagnosis and treatment
News 9 December 2016

The project “Early diagnosis of pulmonary hypertension in Lviv region” once again tells residents of the city about pulmonary hypertension issues and the importance of early diagnosis and treatment

Lviv city center of social services for families, children and youth gladly agreed to help us inform city residents about the pulmonary hypertension (PH), the importance of early diagnosis and
Read more
In a warm and cozy atmosphere of the “Del Pesto” restaurant the second meeting of the charity project “The Cup of Coffee” was held!
News 9 December 2016

In a warm and cozy atmosphere of the “Del Pesto” restaurant the second meeting of the charity project “The Cup of Coffee” was held!

In a warm and cozy atmosphere of the “Del Pesto” restaurant the second meeting of the charity project “The Cup of Coffee” was held! Vitaly Novosad and the winner of
Read more
The episode of TRK Lviv about project “Cup of Coffee” and the first meeting of Andrew Velykyi and Julia Savostayenko over coffee with dessert
News 9 December 2016

The episode of TRK Lviv about project “Cup of Coffee” and the first meeting of Andrew Velykyi and Julia Savostayenko over coffee with dessert

The episode of TRK Lviv about project “Cup of Coffee”: https://www.facebook.com/profile.php?id=100008303044326 The meeting was held at the “Del Pesto” restaurant  (vul.Kostyushka, 6). We remind you that you can help Alina by
Read more
The “Cup of Coffee” and the first meeting over coffee with dessert with Andriy Velykiy and Julia Savostayenko
News 9 December 2016

The “Cup of Coffee” and the first meeting over coffee with dessert with Andriy Velykiy and Julia Savostayenko

The meeting was held at the “Del Pesto” restaurant (vul.Kostyushka, 6). Julia came first. She was a little worried, but happy. Andrew Velykyi came next, and we started the first
Read more
Social photoshoot involving PH patients
News 26 October 2016

Social photoshoot involving PH patients

Once these women went into the studio it became clear that the photoshoot is going to be a success… and it was. Volodymyr Schurko (who we thank a lot) realized
Read more
Super positive photoshoot of patients with pulmonary hypertension along with Lviv celebrities!
News 24 October 2016

Super positive photoshoot of patients with pulmonary hypertension along with Lviv celebrities!

Yesterday in Lviv along with PH patients and Lviv celebrities we had a photoshoot at the “GT-Studio”. The patients were 6 years old Artem Matkovskyi, Oksana Melnyk, Tatiana Fedosyuk, Victoria
Read more
We along with Hall Skåra on the Conference in Barcelona, Spain
News 10 October 2016

We along with Hall Skåra on the Conference in Barcelona, Spain

Read more
Problems and changes in the future of the PHA Europe
News 10 October 2016

Problems and changes in the future of the PHA Europe

The Conference in Barcelona held an open discussion on positive activities towards overcoming PH and necessary changes in the future of the European Association of PH (PHA Europe). Positive: –
Read more
European Pulmonary Hypertension Association (PHA Europe) awarded CF of “Sister Dalila”
News 10 October 2016

European Pulmonary Hypertension Association (PHA Europe) awarded CF of “Sister Dalila”

We are filled with incredible feelings, pleasant surprise, joy, when daily, hourly, every minute work towards overcoming problems of pulmonary hypertension in Ukraine is appreciated at PHA Europe level. This
Read more
Yurii Kravchenko
We remember them 7 October 2016

Yurii Kravchenko

Yurii Kravchenko, born 21/08/1981, from Kharkiv diagnosed with high pulmonary hypertension.
Read more
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