The European Medicines Agency has approved the generic Volibris for the EU marketAmbrisentan Mylan is a medication that is used alone or in combination with other medicines for the treatment
Young girl – Yana Tomashuk (born 1992) has a rare disease – pulmonary hypertension. Treatment for Jana is vital, daily, life-long. Oxygen therapy is needed to improve a girl’s daily
Friends we remind!!! Photocontest in support of patients with pulmonary hypertension continues !!!! You still have the opportunity to vote until July 31 !!! Our photos are numbered 22,23,24, the
As part of the pulmonary hypertension day, we held a flash mob in support of PH patients. Video from Nataliya Synyutka got the most views !!! For what she has
There was held a meeting with public with the new governor of Lviv Region, Markiyan Malskyi.M.Malskyi made it clear that there is a lot of work and noticed:1. An audit
As we promised we report about success that we have after a talk with candidate to Suprime Council. We talked to Andrii Moskalenko about wet walls and today it had
Also yesterday there was held a meeting with the candidate for People’s Deputies, the chairman of the Public Health Committee under the LODA – Oleg Duda . We have heard
In continuation of the dialogue with the candidates for People’s Deputies, on July 2 there was held a working meeting with Andrii Moskalenko at the office of the CF Sister
These days the team of the “Sister Dalila” Foundation with the support of “Ukrainian Philanthropists Forum” took part in the training “Prevention of Professional Burning”. Such a training is extremely
A working meeting was held with representatives of orphan nosologies: tuberous sclerosis, Myopathy Duchenne, pulmonary hypertension, with the participation of a doctor and a nutritionist. We analyzed the situations that
Today we have received small financial support from Mira Dziubinska and sympathetic citizens from Sosnivka. Even smal contribution is very importantand priceless for us. Thank you for help!
Friends let’s all together support the simple desire of the young girl Yana to breathe freely.Since her birth Yana has pulmonary hypertension. Every day girl feels dyspnea.Oxygen therapy with the
Dear PH patients! From September till March we held the first cycle of the rehabilitation program. However, unfortunately, not all patients participated. We understand that there are different circumstances. But
We sadly inform that today Anna Demianets has become an angel. She wanted to live and struggled, but pulmonary hypertension won. We miss … We express our condolesence to her
We invite everyone on May 25 since 15.00 till 18.00 to join the charity event “Music for life” in support of patients with pulmonary hypertension.On the square in front of
On the second day, the representatives of CF “Sister Dalila” took part in a practical seminar on “Foresight study 2030”. Together with the European community, we have considered the trends
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