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CF Sister Dalila

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Pulmonary Hypertension Ukrainian Rare Disease Association - PHURDA CF Sister Dalila

CF Sister Dalila

+38 097 151 09 01
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Find a local specialist
  • Українська
  • Русский
  • English
  •  
  • About us
    • Our history
    • Mission, vision, aims
    • Our team
    • Our membership
    • Our awards
    • Our partners
    • Founding documents
    • Activity reports
      • CF “Sister Dalila”
      • PHURDA
  • CF “Sister Dalila”
    • They need help
    • You helped them
    • We remember them
    • How to help
    • To become a ward
    • Successful stories
  • About PH
    • Classification and WHO functional class
    • What is PAH?
    • What is CTEPH?
    • Symptoms
    • Diagnosis
    • Treatment
    • Therapies
    • ESC/ERS Guidelines
    • Research
    • PH in children
    • PH and pregnancy
  • Get involved
    • Volunteering
    • Awareness campaigns
      • World PH Day
      • PH Awareness month
      • Rare Disease Day
      • Donor Day
      • Previous campaigns/activities
        • Early diagnosis
        • Music for life
    • Advocacy work
      • Expert groups at Ministry of Health
      • Legal support
      • Round tables
    • My PH Library
  • Projects
    • Butterfly in Blue
      • Fashion show
      • Beauty salon
    • Cork for Life
    • O2Kids
    • St. Nicolas Day
    • For coffee
    • Charity Shop
    • Rehabilitation program
    • Fundraising projects
  • News and events
    • Conferences
      • First patient meeting
      • Christmas debates
      • 5 years of activity
    • Mariposa Journal
    • News
    • Support groups for PH patients
  • Contact Us
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The European Medicines Agency has approved the generic Volibris for the EU market
News 2 September 2019

The European Medicines Agency has approved the generic Volibris for the EU market

The European Medicines Agency has approved the generic Volibris for the EU marketAmbrisentan Mylan is a medication that is used alone or in combination with other medicines for the treatment
Read more
Lets support the project
News 10 August 2019

Lets support the project

Young girl – Yana Tomashuk (born 1992) has a rare disease – pulmonary hypertension. Treatment for Jana is vital, daily, life-long. Oxygen therapy is needed to improve a girl’s daily
Read more
Friends we remind!!! Photocontest in support of patients with pulmonary hypertension continues !!!!
News 20 July 2019

Friends we remind!!! Photocontest in support of patients with pulmonary hypertension continues !!!!

Friends we remind!!! Photocontest in support of patients with pulmonary hypertension continues !!!! You still have the opportunity to vote until July 31 !!! Our photos are numbered 22,23,24, the
Read more
As part of the pulmonary hypertension day, we held a flash mob in support of PH patients
News 20 July 2019

As part of the pulmonary hypertension day, we held a flash mob in support of PH patients

As part of the pulmonary hypertension day, we held a flash mob in support of PH patients. Video from Nataliya Synyutka got the most views !!! For what she has
Read more
There was held a meeting with public with the new governor of Lviv Region, Markiyan Malskyi
News 20 July 2019

There was held a meeting with public with the new governor of Lviv Region, Markiyan Malskyi

There was held a meeting with public with the new governor of Lviv Region, Markiyan Malskyi.M.Malskyi made it clear that there is a lot of work and noticed:1. An audit
Read more
Friends we need your support !!!
News 20 July 2019

Friends we need your support !!!

Friends we need your support !!!The European Association for Pulmonary Hypertension holds a photo contest.Photo winner
Read more
As we promised we report about success
News 5 July 2019

As we promised we report about success

As we promised we report about success that we have after a talk with candidate to Suprime Council. We talked to Andrii Moskalenko about wet walls and today it had
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yesterday there was held a meeting with the candidate for People’s Deputies  the chairman of the Public Health Committee under the LODA – Oleg Duda
News 5 July 2019

yesterday there was held a meeting with the candidate for People’s Deputies the chairman of the Public Health Committee under the LODA – Oleg Duda

Also yesterday there was held a meeting with the candidate for People’s Deputies, the chairman of the Public Health Committee under the LODA – Oleg Duda . We have heard
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on July 2 there was held a working meeting with Andrii Moskalenko at the office of the CF Sister Dalila
News 5 July 2019

on July 2 there was held a working meeting with Andrii Moskalenko at the office of the CF Sister Dalila

In continuation of the dialogue with the candidates for People’s Deputies, on July 2 there was held a working meeting with Andrii Moskalenko at the office of the CF Sister
Read more
Friends! It’s important
News 5 July 2019

Friends! It’s important

Friends! It’s important We ask
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These days the team of the “Sister Dalila”  took part in the training “Prevention of Professional Burning”
News 1 July 2019

These days the team of the “Sister Dalila” took part in the training “Prevention of Professional Burning”

These days the team of the “Sister Dalila” Foundation with the support of “Ukrainian Philanthropists Forum” took part in the training “Prevention of Professional Burning”. Such a training is extremely
Read more
There was held a working meeting with representatives of orphan nosologies
News 1 July 2019

There was held a working meeting with representatives of orphan nosologies

A working meeting was held with representatives of orphan nosologies: tuberous sclerosis, Myopathy Duchenne, pulmonary hypertension, with the participation of a doctor and a nutritionist. We analyzed the situations that
Read more
It’s a pleasure to get presents.
News 1 July 2019

It’s a pleasure to get presents.

It’s a pleasure to get presents. We thank Sister Dalila for nice present for our organization, care about us.
Read more
we have received small financial support
News 1 July 2019

we have received small financial support

Today we have received small financial support from Mira Dziubinska and sympathetic citizens from Sosnivka. Even smal contribution is very importantand priceless for us. Thank you for help!
Read more
Friends let’s all together support the simple desire of the young girl
News 8 June 2019

Friends let’s all together support the simple desire of the young girl

Friends let’s all together support the simple desire of the young girl Yana to breathe freely.Since her birth Yana has pulmonary hypertension. Every day girl feels dyspnea.Oxygen therapy with the
Read more
From September till March we held the first cycle of the rehabilitation program
News 8 June 2019

From September till March we held the first cycle of the rehabilitation program

Dear PH patients!  From September till March we held the first cycle of the rehabilitation program. However, unfortunately, not all patients participated. We understand that there are different circumstances. But
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!For the life of orphan patients!
News 8 June 2019

!For the life of orphan patients!

!For the life of orphan patients!
Read more
We sadly inform that today Anna Demianets has become an angel
News 8 June 2019

We sadly inform that today Anna Demianets has become an angel

We sadly inform that today Anna Demianets has become an angel. She wanted to live and struggled, but pulmonary hypertension won. We miss … We express our condolesence to her
Read more
We invite everyone on May 25 since 15.00 till 18.00 to join the charity event
News 25 May 2019

We invite everyone on May 25 since 15.00 till 18.00 to join the charity event

We invite everyone on May 25 since 15.00 till 18.00 to join the charity event “Music for life” in support of patients with pulmonary hypertension.On the square in front of
Read more
On the second day, the representatives of CF “Sister Dalila” took part in a practical seminar
News 25 May 2019

On the second day, the representatives of CF “Sister Dalila” took part in a practical seminar

On the second day, the representatives of CF “Sister Dalila” took part in a practical seminar on “Foresight study 2030”. Together with the European community, we have considered the trends
Read more
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Success on Fundraising activity

Success on Fundraising activity

News 6 November 2023
Mental health

Mental health

News 6 November 2023
PHURDA representatives participated in ERS Congress 2023

PHURDA representatives participated in ERS Congress 2023

News 6 November 2023

PHURDALCCF Sister Dalila

«Ми ставимо перед собою багато цілей, та найголовніше, що хотілося б донести – немає безвихідних ситуацій і немає приречених людей – є чиясь байдужість. Але варто зробити маленький крок назустріч ближньому і завтрашній день обов’язково подарує надію»

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