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Pulmonary Hypertension Ukrainian Rare Disease Association - PHURDA CF Sister Dalila

CF Sister Dalila

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  • Українська
  • Русский
  • English
  •  
  • About us
    • Our history
    • Mission, vision, aims
    • Our team
    • Our membership
    • Our awards
    • Our partners
    • Founding documents
    • Activity reports
      • CF “Sister Dalila”
      • PHURDA
  • CF “Sister Dalila”
    • They need help
    • You helped them
    • We remember them
    • How to help
    • To become a ward
    • Successful stories
  • About PH
    • Classification and WHO functional class
    • What is PAH?
    • What is CTEPH?
    • Symptoms
    • Diagnosis
    • Treatment
    • Therapies
    • ESC/ERS Guidelines
    • Research
    • PH in children
    • PH and pregnancy
  • Get involved
    • Volunteering
    • Awareness campaigns
      • World PH Day
      • PH Awareness month
      • Rare Disease Day
      • Donor Day
      • Previous campaigns/activities
        • Early diagnosis
        • Music for life
    • Advocacy work
      • Expert groups at Ministry of Health
      • Legal support
      • Round tables
    • My PH Library
  • Projects
    • Butterfly in Blue
      • Fashion show
      • Beauty salon
    • Cork for Life
    • O2Kids
    • St. Nicolas Day
    • For coffee
    • Charity Shop
    • Rehabilitation program
    • Fundraising projects
  • News and events
    • Conferences
      • First patient meeting
      • Christmas debates
      • 5 years of activity
    • Mariposa Journal
    • News
    • Support groups for PH patients
  • Contact Us
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Help Yana breath!
News 12 March 2019

Help Yana breath!

Help Yana breath!!! Support from each of us is important for her. Ability to breath is given to us by nature. But for Yana it’s very hard and precious to
Read more
Two containers for plastic caps were put in the facilities of kindergarten
News 12 March 2019

Two containers for plastic caps were put in the facilities of kindergarten

Two containers for plastic caps were put in the facilities of kindergarten # 70. We thank Lviv City Council for financial support
Read more
Tania Mykolaivna about rehab program
News 12 March 2019

Tania Mykolaivna about rehab program

Таня Миколаївна is sharing her impressions about rehab program and Anna Mazurenko Children’s Health Center Thank You Tania!!! https://www.facebook.com/100008303044326/videos/2364226407197438/
Read more
Mira Dziubinska is sharing her emotions after rehab program
News 12 March 2019

Mira Dziubinska is sharing her emotions after rehab program

Mira Dziubinska is sharing her emotions after rehab program.  
Read more
The rehab program for PH patients came to its end
News 12 March 2019

The rehab program for PH patients came to its end

The rehab program for PH patients came to its end. The last session was dedicated to panic attackes  and how to cope with it by yourself or to help someone
Read more
The last 12th session of the rehab program
News 12 March 2019

The last 12th session of the rehab program

The last 12th session of the rehab program “Social and expert support for PH patients”, the 1st part –  physical activities from Tetiana Smirnova at Anna Mazurenko Children’s Health Center.
Read more
On March 6 there will be held the last session of rehab program
News 4 March 2019

On March 6 there will be held the last session of rehab program

It is aroma of Spring outside. 
Read more
February 28 – International Rare  Disease Day
News 4 March 2019

February 28 – International Rare Disease Day

February 28 is a special day -It’s  International Rare Diseases Day#ShowYourRare. It is celebrated in 90 countries in the  world. On this day our PH patients decided to do something
Read more
WE are rare, but We are not alone
News 4 March 2019

WE are rare, but We are not alone

WE are rare, but We are not alone! On February 28 is celebrated World Rare Disesse Day. Show your rare!!! https://www.facebook.com/100008303044326/videos/2359593627660716/    
Read more
Life in ECO Style in Chervonohrad
News 4 March 2019

Life in ECO Style in Chervonohrad

The theme of sorting garbage, and ecology in general, is very relevant and important. As part of the ECO Life Project in Chervonograd, we met sympathetic and socially responsible people.
Read more
Social entrepreneurship in Ukraine.
News 4 March 2019

Social entrepreneurship in Ukraine.

Social entrepreneurship in Ukraine. New economy? Do we need a law? Social Investing? Who and How does it in Ukraine. Successful examples of social enterprises in the world and in
Read more
Representatives from the Charity Foundation “Sister Dalila” visited the Conference on Social Entrepreneurship
News 4 March 2019

Representatives from the Charity Foundation “Sister Dalila” visited the Conference on Social Entrepreneurship

Representatives from the Charity Foundation “Sister Dalila”, PH Urda are at the Conference on Social Entrepreneurship in Kyiv. The conference is organized by the Ukrainian Philanthropists Forum.We look forward to
Read more
Our PH patients are incredible young women
News 4 March 2019

Our PH patients are incredible young women

Our PH patients are incredible young women!We were actively moving today thus strenghting our organism. After several breaks we returned to the real physical excersises that were organized for us
Read more
Help Yana to breathe!
News 9 February 2019

Help Yana to breathe!

Help Yana to breathe!By making 16-20 breaths a minute, a healthy person does not even think that there is someone who is extremely hard to breath. Climbing up, not even
Read more
To support patients with pulmonary hypertension, you can make a charitable contribution to CF “Sister Dalila”
News 9 February 2019

To support patients with pulmonary hypertension, you can make a charitable contribution to CF “Sister Dalila”

Or love that helps!To support patients with pulmonary hypertension, you can make a charitable contribution to CF “Sister Dalila” card account. In our turn, we will give you a handmade
Read more
Each session of rehab program has its specialty
News 9 February 2019

Each session of rehab program has its specialty

Each session of rehab program has its specialty
Read more
5 children became orphan because of an imperfect healthcare system
News 9 February 2019

5 children became orphan because of an imperfect healthcare system

5 children became orphan because of an imperfect healthcare system.Only in the “poor” country, saving money on early diagnosis, prevention and rehabilitation, having spent about 5 million UAH of budget
Read more
We continue our rehab !!!
News 9 February 2019

We continue our rehab !!!

We continue our rehab !!! We are waiting for all of you, dear PH patients on February 6 at 10:30 at the  Anna Mazurenko Children’s Health Center, address: Dniesterska str,
Read more
Together with our PH patients and Oksana Rubay
News 9 February 2019

Together with our PH patients and Oksana Rubay

Together with our PH patients and Oksana Rubay, we held strategic planning for a more productive follow-up. We talked about how PH patient looks like and he is seen by
Read more
We want to understand what side to move with you?If we are with you in one direction, come.
News 30 January 2019

We want to understand what side to move with you?If we are with you in one direction, come.

We want to understand what side to move with you?If we are with you in one direction, come. Do you live in another city? We can conduct “Strategic Planning” online,
Read more
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World Lung Day

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We are grateful to Kjeld Hansen for cooperation and support!

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News 30 October 2023
PH Community lost a friend

PH Community lost a friend

News 30 October 2023

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