Mariposa Journal is published by the PHA Europe and is published twice a year. Here you can find the information about the activities of pulmonary hypertension associations in the world. We invite you to read the articles about CF “Sister Dalila” and PHURDA.
Mariposa n. 14
The region of Lviv, Ukraine, welcomed WPHD supporters to its streets in May for a special walk through the city entitled “Hodoton”, organised by the PH charity foundation “Sister Dalila”.
Mariposa n. 15
In 2015 the LCCF “Sister Dalila”& PHURDA carried out a number of activities aimed at supporting PH patients and protecting their rights. We organized a flashmob involving children, to support patients with rare diseases, near Lviv City Hall.
Mariposa n. 16
To mark WPHD 2016, over 400 children ran in a “Get breathless for PH” race supported by Miss Lviv 2016. The runners all wore “Get Breathless for PH” t-shirts to raise awareness of PH and were able to educate the spectators about the condition.