Unexpectedly quickly the new MOH wants to leave thousands of Ukrainians with rare nosologies to DIE!!!
Unexpectedly quickly the new MOH wants to leave thousands of Ukrainians with rare nosologies to DIE!!! – it’s inhuman -incompetent-irresponsibly Office of President of Ukraine, you can not shut eyes We are very concerned about the situation in the financing of orphan nosology and it must be corrected immediately.
We are very concerned about the situation in the financing of orphan nosology and it must be corrected immediately.I wonder who so cynically decided to reduce the funding of orphan Finally we have news that causes the joy of patients and patient organizations
Finally we have news that causes the joy of patients and patient organizations This is a very important victory that gives us confidence that we are moving forward.PH Urda, “Sister The position of Borys Todurov regarding the development of transplantation in Ukraine.
The position of Borys Todurov regarding the development of transplantation in Ukraine. https://gazeta.ua/articles/health/_a-proshu-u-deputativ-ne-groshej-a-zmin-u-zakoni-todurov/721502?fbclid=IwAR08FAzFycv7zyG8BleX0E1sWAQI5RAtLJH3ExGMz6Uso08MFCkbRta2xcI Well defended!
Well defended!MP Olga Stefanyshyn, “Patients of Ukraine”, CF “Sister Dalila”, Pulmonary Hypertension Ukrainian Rare Disease Association – PH Urda, deputies from parliament, patients of different nosologies in Ukraine, NGOs.Thanks again In the meantime, there are those who defend the position of orphan patients within the facilities of the renewed Ministry of Health.
In the meantime, there are those who defend the position of orphan patients within the facilities of the renewed Ministry of Health.Thank you Inna, thank you Zhenia!Let God everything work PH patients, we invite you to continue the rehabilitation program on October 2 !!!
PH patients, we invite you to continue the rehabilitation program on October 2 !!! If you missed the first meetings, come anyway !!!As always, we are waiting for you at The Board of the Public Council of Lviv Regional State Administration, chaired by Andriy Bolyubash, considered the situation of sharply reducing in funding of vital care for patients with rare disease
The Board of the Public Council of Lviv Regional State Administration, chaired by Andriy Bolyubash, considered the situation of sharply reducing in funding of vital care for patients with rare Unexpectedly quickly the new MOH wants to leave the thousands of Ukrainians with rare nosologies to DIE!!!
Unexpectedly quickly the new MOH wants to leave the thousands of Ukrainians with rare nosologies to DIE!!! A session at the Anna Mazurenko Children’s Health Center was held in a close circle
A session at the Anna Mazurenko Children’s Health Center was held in a close circle. Halyna Kapshiy helped us to seek our flow of thoughts, feelings, emotions, interactions. Be light, heavy, September 17 was held in Ukraine as the “Patient Safety Day”
September 17 was held in Ukraine as the “Patient Safety Day” proclaimed by President of Ukraine Mr. Volodymyr Zelensky.On this day, patients with rare diseases, patient organizations, came under the A regional roundtable on “Building trust between authorities and civil society organizations” was held in Lviv.
A regional roundtable on “Building trust between authorities and civil society organizations” was held in Lviv.The activities of public, charitable organizations (CSOs) are aimed, first of all, at achieving positive We are waiting for you on September 18 at the 2nd session of the rehabilitation program for patients with PH at Anna Mazurenko Children’s Health Center.
Start is taken !!!We are waiting for you on September 18 at the 2nd session of the rehabilitation program for patients with PH at Anna Mazurenko Children’s Health Center. 11.00-12.30 – dance Yana Tomashuk received a portable oxygen concentrator
Today, Yana Tomashuk received a portable oxygen concentrator “Innogen One G3” with a spare battery under the project “Give Yana a Breath” from “Sister Dalila” Charity Foundation on the site Congratulations to president of “Sister Dalila” Charitable Foundation
Congratulations to president of “Sister Dalila” Charitable Foundation on her birthday! Let everything in your life be OK! We held 1st session from the second cycle of the rehab program for PH patients
We held 2d session from the second cycle of the rehab program for PH patients On September 4th we start 2 cycle of rehab program for PH patients
Hooray! Continuation!!!On September 4th we begin 2d cycle of the Rehabilitation Program for PH patients! Schedule:11.00-12.30 – session with a rehabilitation specialist12.30-13.00 – tea / coffee break ☕️- who wants Friends, we are in Instagram now!
You can follow our news in -Instagram: https://www.instagram.com/cfsisterdalila_phurda/(cfsisterdalila_phurda)– twitter: https://twitter.com/FondPoryatunok/ – YouTube: https://www.youtube.com/channel/UCGE2A6cWmq9KPCcZd5pnadw… – Facebook _ PH Urda: https://www.facebook.com/profile.php?id=100008303044326 – Facebook _ Charitable Foundation “Sister Dalila”: https://www.facebook.com/poryatunok/Our website: poryatunok.infoHot line: +380971510901 Representatives from CF “Sister Dalila” and PHURDA took part in a webinar hosted by Actelion
Representatives from CF “Sister Dalila” and PHURDA took part in a webinar hosted by Actelion, Intimacy Affiliation, Family Planning and PH – Talking with My Partner and Health care TeamAccording