“Christmas debates” on the Rare Disease Day website.
Information about “Christmas debates” on the Rare Disease Day website. #RareDiseaseDay #орфаннийдзвін #PHUkraine #cfsisterdalila #pulmonaryhypertension #рідкіснізахворювання #cdkl5#легеневагіпертензія #мукополісахаридоз #туберознийсклероз #міопатіяДюшеннаБеккера #хворобаГоше #новинильвова #новиниУкраїни https://www.rarediseaseday.org/event/ukraine/160?fbclid=IwAR3afJRSmKq05Mu25FWUxnjwKDw0T-Jagd5hm01BAWRshkUksKn6vOFRwh0#.Xi8GB9p2yy0.facebook Ukrainian Philanthropic Forum tells about “Christmas debates” and Orphan bell
Ukrainian Philanthropic Forum Український форум благодійників tells about “Christmas debates” and Orphan bell #орфаннийдзвін #RareDiseaseDay #орфаннийдзвін #PHUkraine #cfsisterdalila #pulmonaryhypertension #рідкіснізахворювання #cdkl5#легеневагіпертензія #мукополісахаридоз #туберознийсклероз #міопатіяДюшеннаБеккера #хворобаГоше #новинильвова #новиниУкраїни https://ufb.org.ua/sektor-blagodijnosti/blagodijni-organizacii/novini-v-ukraini-blagodijnix-organizacij.htm?id=5971&fbclid=IwAR3IVIH272BiuqDHcLStxZomXjMrZ-RZi779t7Fsy0CzMJqW7xLoVxFEYG4 The pharmaceutical companies Acceleron Pharma and Fulcrum Therapeutics are working together
The pharmaceutical companies Acceleron Pharma and Fulcrum Therapeutics are working together to identify small molecules that can be used to treat lung diseases, including pulmonary hypertension (PH). Through this collaboration, European Association of Pulmonary Hypertension Discusses Christmas Debates
Pulmonary Hypertension European Association tells about Christmas Debates and Movement of Patients with Rare Diseases # Orphan Bell#RareDiseaseDay # orphan bell #PHUkraine #cfsisterdalila #pulmonaryhypertension # rare diseases The informal part of the Christmas debates, without ties and jackets, was conducted by Iuliia Vinachevska
The informal part of the Christmas debates, without ties and jackets, was conducted by Iuliia Vinachevska, founder of the platform for positive transformations. To get to know each other better, The final finishing touches, before the start of St. Andrew’s Evening.
The final finishing touches, before the start of St. Andrew’s Evening. IV Partnership and Development NGO Forum to begin soon
IV Partnership and Development NGO Forum to begin soon From the lab to patient: How the medicines are approved
From the lab to patient: How the medicines are approved https://www.youtube.com/watch?v=568SI1W-ekE&feature=emb_share&fbclid=IwAR2iJSSXnxexRyYzk5gZ9lF1JyuwTgP7EToAWlcuR7iqqim4rzVAxVsjW5I As it became known from the response of the DOH of the Lviv Regional State Administration of 07.11.2019, the need for funds for 2020
As it became known from the response of the DOH of the Lviv Regional State Administration of 07.11.2019, the need for funds for 2020 in the direction of “improving medical At the #APHEC2019 in Barcelona, as members of the Patient Advisory Group, we had the privilege of presenting the European Patient Ambassador Program.
At the #APHEC2019 in Barcelona, as members of the Patient Advisory Group, we had the privilege of presenting the European Patient Ambassador Program.This is a completely free online training program In the process of approval of the Draft Decision “On the Regional Budget of the Lviv Region for 2020
In the process of approval of the Draft Decision “On the Regional Budget of the Lviv Region for 2020” by the Lviv Regional Council, we managed to find out that The good starts from each of us!
The good starts from each of us! The atmosphere of miracles, fabulous mood and good deeds is already noticeable.Holidays are beginning soon … Birthdays … New Year … Christmas …And How can a non-profit / charity organization rent facilities
“How can a non-profit / charity organization rent facilities?”.A video recording of a webinar during which the following questions were answered:– How do I get to know about vacant facilities the ward of “Sister Dalila” Charity Foundation
It is pleasure to hear that the ward of “Sister Dalila” Charity Foundation – Yana Tomashuk, thanks to the “Buy Yana a Breath” project, posted on the Ukrainian Philathropic Market 100 days left to celebrate Rare Disease Day !!
100 days left to celebrate Rare Disease Day !!! We invite everyone to join us on February 29th and show your rare. Let’s brake the information barrier together! More information We have received the long-awaited and much needed oxygen generator for the wards of CF “Sister Dalila”
And now, we would like to thank everyone again who supports the “Cork for Life” campaign. Today we have received the long-awaited and much needed oxygen generator for the wards The INOpulse vasodilator increased physical activity and helped maintain higher levels of exercise in people with PH-PF
The INOpulse vasodilator increased physical activity and helped maintain higher levels of exercise in people with pulmonary fibrosis (PH-PF)-associated pulmonary hypertension (PH). These are preliminary results of phase 2 trials.INOpulse, EURORDIS announced about the EURORDIS Photo Award 2020!
EURORDIS announced about the EURORDIS Photo Award 2020!The Photo Award is an opportunity to visually express what it means to live with a rare disease and to share your story European Association of Pulmonary Hypertension tells about Rehabilitation Program for Patients with PAH in Lviv
European Association of Pulmonary Hypertension tells about Rehabilitation Program for Patients with PAH in Lviv) at Anna Mazurenko Children’s Health Centre. Thanks for support! #cfsisterdalila #phurda https://www.facebook.com/phaeurope/?__tn__=kCH-R&eid=ARD1RnBX47f4c-LX7VWhaCCOKrquyjEPHIlJm5WB0atphZAOVTUXyy3HkZdEAxhFt5uP1H9h9i729gF7&hc_ref=ARRFnPTYxKNGdAoL1FRG6Rvjf2eZjJJdVx1TWKcrOeuVfFR1Ti4yDlrp19mVKkwRMPY&fref=nf&__xts__[0]=68.ARAyNJDd1MiKSKGvVM8mGznAflUu1YoPvUwasKOT1pTZBrcn6iRACFQ2bFZ6jBOe0AfO2BVa7o75c6mqtRacm7u93sRB6ZKUIIC6yEmyXaIGMBK31uh_bCPsKY7zNxkPGeBR601f2YIJxfY2TclCeuCl-fPDeInmIUmoI0NTl9gvHIzAldXIaQxZwQ3Zd-4Y8v6lp_DAiewSksfQbi_WLryf7AzGkSPqsBUlZoj5vjxhDUdrIEm7AluPU2B8Rwj5P9EEBffOr4mepq_VN3E0nK6szll4Pz9l3O1pMWoPV9_QsamcuseMIvx19aistdxeboU5xksWFQDU-JVx0Qotl7BOzQ