Living at times of pandemia!
Living at times of pandemia! – I am a nurse, my daughter is PH patient. What should I do? Since the corona virus primarily attacks the lungs, it will probably !Information about income!
!Information about income! 24.03 – 200 UAH-Totally- 2130 UAH.❗Fundraising continue❗Urgent needs-protective clothing for doctors.-face shields for doctors.-oxygen concentrarors.❗Details for help❗– card account 5169 3324 0663 9800 «Privatbank» (trustee – Andrii !Information about income!
!Information about income! 23.03 – 680 UAH-Totally- 1930 UAH.❗Fundraising continue❗Urgent needs-protective clothing for doctors.-face shields for doctors.-oxygen concentrarors.❗Details for help❗– card account 5169 3324 0663 9800 «Privatbank» (trustee – Andrii We need support in order to purchase protective clothing and oxygen concentrators
We need support in order to purchase protective clothing for doctors and oxygen concentrators for patients with Covid-19 http://forpost.lviv.ua/novyny/26732-sestry-dalily-zbyraiut-koshty-dlia-kupivli-medychnoho-obladnannia?fbclid=IwAR1KamVv3un4EDquynIiX_l0ri3AUtJfc7lYYnJTHPawy0SBb1nD7h-XBDU At the time of the epidemiological situation there is a need for protective equipment for doctors
No panic!At the time of the epidemiological situation there is a need for our specialized medical institution – Lviv Regional Clinical Hospital:– medical face shields;– special clothing for doctors.There is Advises from infectious disease specialist
Advises from experiences infectious disease specialist from Lviv Regional Infectious Disease Hospital Natalia Tymko at the times of epidemia Covid-19 https://www.youtube.com/watch?v=V20mAfwESjc&feature=youtu.be&fbclid=IwAR2HzMbObZVUQyPL51q7a5Gxol97B4HwhSs14ulHMGDdsB9Pe6KuA0NPdP8 COVID – 19 March update from WHO
Everything you need to know about Covid-19March update from WHO https://www.youtube.com/watch?v=JKpVMivbTfg&fbclid=IwAR1q2eSJKi-SQ4Udmi3TmXwEESNTkCS5GKSbG4rT_heFI-sWNnH2tv-A55M The Pulmonary Hypertension Association of Europe reports and warns about the coronavirus
Dear PH community!The Pulmonary Hypertension Association of Europe reports and warns about the COVID-19 coronavirus situation. Professor Marion Delcroix and Prof. Mark Humbert reminded of compliance with all protocols from the Department At the office of CF “Sister Dalila” there was held a workshop of making a leaflet
At the office of CF “Sister Dalila” there was held a workshop of making a leaflet with the participation of patients with pulmonary hypertension.During the master class, patients drew, cut, The Ukrainian Medical Society in Lviv became a platform for communication on orphan diseases
The Ukrainian Medical Society in Lviv became a platform for communication on orphan diseases with the active assistance of the head of the medical society Oleg Duda.Yesterday, representatives of PH The meeting of the Commission for Social Protection of the Population and ATO Participants at the Lviv Regional State Administration was held.
The meeting of the Commission for Social Protection of the Population and ATO Participants at the Lviv Regional State Administration was held.During the meeting, we, the PH Urda representatives, together On Rare Disease Day – February 29th The Orphan Bell movement got its own logo
On Rare Diseases Day – February 29, the # orphan bell movement received its own logo !!!Not only did we create a plan of action and a roadmap, we created The patients’ view with PAH becomes extremely positive
The patients’ view with PAH becomes extremely positive. Over the past decade, medical treatment for PAH has undergone a rapid change in therapies for disease-targeted therapies. https://www.facebook.com/phaeurope/photos/a.269363593085044/2920661387955238/?type=3&theater PAH (Pulmonary Arterial Hypertension) is a very hard disease to diagnose
«PAH (Pulmonary Arterial Hypertension) is a very hard disease to diagnose. The reason is that the symptoms are diffuse and commonly mistaken for symptoms of less serious problems like obesity, Within the “Orphan bell” the first billboard is already located in Lviv
Within the “Orphan bell” the first billboard with a patient of pulmonary hypertension – Mira Dzubinska is already located in Lviv. Pulmonary hypertension is not a sentence if you learn to It is very important that the PAH is diagnosed as soon as possible
It is very important that the PAH is diagnosed and treatment started as soon as possible, because if to be left untreated, the disease can progress very fast #орфанниийдзвін #RareDiseaseDay2020#БлагодійнийфондСестриДаліли #рідкіснізахворювання #новинильвова #новиниУкраїни Pulmonary hypertension is one of the 8,000 rare and incurable diseases
Pulmonary hypertension is one of the 8,000 rare and incurable diseases. Setting a correct diagnosis takes about three years. Treatment is expensive and life-long. In the world there are 16 We thank European Lung Foundation for publications of our activity.
We thank European Lung Foundation for publications of our activity. #РіздвяніДебати #PHURDA #cfsisterdalila #charityshop #PHUkraine #легеневагіпертензія #благодійність https://www.europeanlung.org/en/news-and-events/news/patient-organisation-round-up-and-goals-for-the-year-january-2020?fbclid=IwAR2cBWDI90hOKVbsSlMOrtINEOhaiTRFodRjUHsoHBH8r2I7XZt2CIWrFRY Huray!! Orphan bell
Huray!! The protocol signatures are affixed now. The movement of the Orphan bell community is now officially on paper. Oksana Kulish PH Urda Ольга Цап Оксана Рубай Iryna Hladun Nataliia Fedosiienko Karina Pietoian Михайло Паук Tonya Stasiv Галина Підгайна Вікторія