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  • Українська
  • Русский
  • English
  •  
  • About us
    • Our history
    • Mission, vision, aims
    • Our team
    • Our membership
    • Our awards
    • Our partners
    • Founding documents
    • Activity reports
      • CF “Sister Dalila”
      • PHURDA
  • CF “Sister Dalila”
    • They need help
    • You helped them
    • We remember them
    • How to help
    • To become a ward
    • Successful stories
  • About PH
    • Classification and WHO functional class
    • What is PAH?
    • What is CTEPH?
    • Symptoms
    • Diagnosis
    • Treatment
    • Therapies
    • ESC/ERS Guidelines
    • Research
    • PH in children
    • PH and pregnancy
  • Get involved
    • Volunteering
    • Awareness campaigns
      • World PH Day
      • PH Awareness month
      • Rare Disease Day
      • Donor Day
      • Previous campaigns/activities
        • Early diagnosis
        • Music for life
    • Advocacy work
      • Expert groups at Ministry of Health
      • Legal support
      • Round tables
    • My PH Library
  • Projects
    • Butterfly in Blue
      • Fashion show
      • Beauty salon
    • Cork for Life
    • O2Kids
    • St. Nicolas Day
    • For coffee
    • Charity Shop
    • Rehabilitation program
    • Fundraising projects
  • News and events
    • Conferences
      • First patient meeting
      • Christmas debates
      • 5 years of activity
    • Mariposa Journal
    • News
    • Support groups for PH patients
  • Contact Us
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To your attention a story #3 of Oksana Iakymets (diagnosis – PH) from the story heading about her life during Covid pandemic
News 13 November 2020

To your attention a story #3 of Oksana Iakymets (diagnosis – PH) from the story heading about her life during Covid pandemic

We have started telling the heading of stories on the theme: “How the Covid-19 pandemic is affecting the life of PH patient?” To your attention a story #3 of Svitlana
Read more
To your attention a story #2 of Svitlana Sazhyna (diagnosis – PH) from the story heading about her life during Covid pandemic
News 13 November 2020

To your attention a story #2 of Svitlana Sazhyna (diagnosis – PH) from the story heading about her life during Covid pandemic

 We have started telling the heading of stories on the theme: “How the Covid-19 pandemic is affecting the life of PH patient?” To your attention a story #2 of Svitlana
Read more
Interview with Nazzareno Galie, Professor at the University of Bologna, on the role of trust and cooperation between patients with Pulmonary Hypertension and physicians.
News 13 November 2020

Interview with Nazzareno Galie, Professor at the University of Bologna, on the role of trust and cooperation between patients with Pulmonary Hypertension and physicians.

Interview with Nazzareno Galie, Professor at the University of Bologna, on the role of trust and cooperation between patients with Pulmonary Hypertension and physicians. As a result, you can see
Read more
Interview with Harold Fischer, the President of the Austrian Association of Pulmonary Hypertension
News 13 November 2020

Interview with Harold Fischer, the President of the Austrian Association of Pulmonary Hypertension

Interview with Harold Fischer, the President of the Austrian Association of Pulmonary Hypertension. His personal experience and his daughter`s difficult path as a PH patient and a positive look for
Read more
We have started our story heading “How the Covid-19 pandemic is affecting the life of PH patient?”
News 13 November 2020

We have started our story heading “How the Covid-19 pandemic is affecting the life of PH patient?”

We have started our story heading “How the Covid-19 pandemic is affecting the life of PH patient?” To your attention a story #1 of Viktoriia Burbura (diagnosis – PH): 1.
Read more
Is it safe for PH patients to go to work? What should a PH patient do is his/her family member gets sick?
News 22 October 2020

Is it safe for PH patients to go to work? What should a PH patient do is his/her family member gets sick?

Is it safe for PH patients to go to work?      Adults with PH should try to work remotely whenever possible. You should consider the infection rate in your community,
Read more
Flu vaccine for PAH Patients. I have PAH. Do I need the flu vaccine?
News 21 October 2020

Flu vaccine for PAH Patients. I have PAH. Do I need the flu vaccine?

Flu vaccine for PAH Patients. I have PAH. Do I need the flu vaccine?       Yes. All PAH patients should get the flu vaccine. Will getting the flu vaccine cause
Read more
EURORDIS Winter School, April 12-16, 2021
News 21 October 2020

EURORDIS Winter School, April 12-16, 2021

EURORDIS Winter School. The EURORDIS Winter School on Scientific Innovation and Translational Research consists of one week training in April, and the training modules below, which are available for anyone to
Read more
What type of mask or face covering should I wear while KOVID-19 pandemic?
News 20 October 2020

What type of mask or face covering should I wear while KOVID-19 pandemic?

Recent clinical and laboratory studies have shown that cloth masks or face coverings can provide an extra layer of protect to prevent respiratory and aerosol droplets from traveling through the
Read more
We continue the series of charitable drawings
News 19 October 2020

We continue the series of charitable drawings

We continue the series of charitable drawings. Lot #2 – knitted collection “Bear” (by the link you will find the photo: https://www.facebook.com/groups/253271375156594/permalink/915398618943863/) Here are the conditions: Make a donation to
Read more
How do I know if my breathing issues are due to PH or caused by COVID-19?
News 19 October 2020

How do I know if my breathing issues are due to PH or caused by COVID-19?

How do I know if my breathing issues are due to PH or caused by COVID-19? Symptoms of COVID-19 can be difficult to distinguish from your PH and from other
Read more
We had performed our first drawing of charitable lots
News 19 October 2020

We had performed our first drawing of charitable lots

We had performed our first drawing of charitable lots.   While the performance of drawing on the site random.org the number “16 “ has been the victorious. We congratulate Andriy
Read more
“We want all the patients have tomorrow including all our patients with Pulmonary Hypertension.”
News 19 October 2020

“We want all the patients have tomorrow including all our patients with Pulmonary Hypertension.”

        “We want all the patients have tomorrow including all the patients with Pulmonary Hypertension.” This is a wish from the magazine Mariposa from the article of PHURDA. We are
Read more
Good starts from you!
News 14 October 2020

Good starts from you!

Good starts from you!   These are true words that are worth considering. It is not an advertisement and an election campaign. It is a fact! We had repairs in
Read more
Project O2KIDS of PHA Europe
News 14 October 2020

Project O2KIDS of PHA Europe

Pulmonary Hypertension Association Europe organizes project O2KIDS to help the PH children.   The aim of the project is to supply with additional means for 10 children who suffer from
Read more
We announce series of charitable drawings.
News 13 October 2020

We announce series of charitable drawings.

Lot #1 – exciting game-lotto “Natural history kaleidoscope”, which will make everyone dive into an amazing travelling the world that is surrounding us! You can win this wonderful game, making
Read more
Medicine – September 18, 2020
News 30 September 2020

Medicine – September 18, 2020

Attention! Important information for PH patients.   Medicine “Syldenaphil” was bought for the costs of the 2019 year. The name of the preparation is “HRANPIDAM”, produced by “Akkord Heathcare Limited”,
Read more
He became an Angel…
News 30 September 2020

He became an Angel…

He became an Angel…   It is hard to swallow in such minutes. This state is difficult to describe, these losses of our PH patients are simply unbearable.   Rest
Read more
European Lung Foundation (ELF) put the poster of PHURDA on the site of ELF Patient Organisation Networking Day 2020
News 30 September 2020

European Lung Foundation (ELF) put the poster of PHURDA on the site of ELF Patient Organisation Networking Day 2020

       European Lung Foundation — ELF put the posters about the activity of the pulmonary diseases patient organization on the site of ELF Patient Organization Networking Day 2020,
Read more
Gratitude to Eko Platform and its manager Olha Markiv for active support of the campaign.
News 30 September 2020

Gratitude to Eko Platform and its manager Olha Markiv for active support of the campaign.

We express our great gratitude to Eko Platform and its manager Olha Markiv for active support of the campaign “Cork of life”, gathering of plastic corks. Sincere thanks to Oleh
Read more
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