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CF Sister Dalila

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Pulmonary Hypertension Ukrainian Rare Disease Association - PHURDA CF Sister Dalila

CF Sister Dalila

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Find a local specialist
  • Українська
  • Русский
  • English
  •  
  • About us
    • Our history
    • Mission, vision, aims
    • Our team
    • Our membership
    • Our awards
    • Our partners
    • Founding documents
    • Activity reports
      • CF “Sister Dalila”
      • PHURDA
  • CF “Sister Dalila”
    • They need help
    • You helped them
    • We remember them
    • How to help
    • To become a ward
    • Successful stories
  • About PH
    • Classification and WHO functional class
    • What is PAH?
    • What is CTEPH?
    • Symptoms
    • Diagnosis
    • Treatment
    • Therapies
    • ESC/ERS Guidelines
    • Research
    • PH in children
    • PH and pregnancy
  • Get involved
    • Volunteering
    • Awareness campaigns
      • World PH Day
      • PH Awareness month
      • Rare Disease Day
      • Donor Day
      • Previous campaigns/activities
        • Early diagnosis
        • Music for life
    • Advocacy work
      • Expert groups at Ministry of Health
      • Legal support
      • Round tables
    • My PH Library
  • Projects
    • Butterfly in Blue
      • Fashion show
      • Beauty salon
    • Cork for Life
    • O2Kids
    • St. Nicolas Day
    • For coffee
    • Charity Shop
    • Rehabilitation program
    • Fundraising projects
  • News and events
    • Conferences
      • First patient meeting
      • Christmas debates
      • 5 years of activity
    • Mariposa Journal
    • News
    • Support groups for PH patients
  • Contact Us
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Before Christmas and New Year dreams come true, especially when to speak of dreams aloud
News 3 December 2020

Before Christmas and New Year dreams come true, especially when to speak of dreams aloud

Before Christmas and New Year dreams come true, especially when to speak of dreams aloud. In such a way a dream of CF “Sister Dalila” and the beauty studio «Butterfly
Read more
CF “Sister Dalila” announces a festive charitable event “Hope for Life!” to support our PH patients under guardianship
News 2 December 2020

CF “Sister Dalila” announces a festive charitable event “Hope for Life!” to support our PH patients under guardianship

CF “Sister Dalila” announces a festive charitable event “Hope for Life!”, dedicated to coming holidays and New Year to support our PH patients under guardianship. All the people without exceptions,
Read more
EMA had a workshop on the theme: “Support for Development of Orphan Medicines” on November 30, 2020
News 2 December 2020

EMA had a workshop on the theme: “Support for Development of Orphan Medicines” on November 30, 2020

EMA had a workshop on the theme: “Support for Development of Orphan Medicines” on November 30, 2020. The workshop underlined that patients with rare diseases, shall receive the same treatment
Read more
CF “Sister Dalila” needs help of volunteers!
News 30 November 2020

CF “Sister Dalila” needs help of volunteers!

We need help of volunteers for sorting of plastic corks! The time:  10:00-18:00 o’clock – Monday-Friday                  10:00-15:00 o’clock – Saturday Please, come and help a time comfortable to you
Read more
CF “Sister Dalila” offers wonderful cloth masks for a charitable donation
News 25 November 2020

CF “Sister Dalila” offers wonderful cloth masks for a charitable donation

Dear friends, CF “Sister Dalila” offers you wonderful cloth masks for a charitable donation. CF “Sister Dalila” offers wonderful cloth masks, received from PHA Europe with PH logo for a
Read more
CF “Sister Dalila” needs help of volunteers for sorting of plastic corks
News 25 November 2020

CF “Sister Dalila” needs help of volunteers for sorting of plastic corks

CF “Sister Dalila” needs help of volunteers for sorting of plastic corks. The date: on the 26th -28th of November. The time: since 10:00-20:00 o’clock. Please, come and help at
Read more
PH Portugal will hold S+S Walking of Hope on November, 27, 28 and 29
News 25 November 2020

PH Portugal will hold S+S Walking of Hope on November, 27, 28 and 29

PH Portugal will hold S+S Walking of Hope on November 27, 28 and 29.  However, since we are in the middle of the Awareness Month for Pulmonary Hypertension, PH Portugal wanted
Read more
“COVID-19 is lethal also for younger people”, – PH Association of Slovenia
News 25 November 2020

“COVID-19 is lethal also for younger people”, – PH Association of Slovenia

“COVID-19 is lethal also for younger people”, – PH Association of Slovenia. PH Association of Slovenia has made a survey among the patients of Europe on the theme: “COVID-19 is
Read more
CF “Sister Dalila” continues receiving letters to Saint Mykolay from children
News 25 November 2020

CF “Sister Dalila” continues receiving letters to Saint Mykolay from children

CF “Sister Dalila” continues receiving letters to Saint Mykolay from children. There are such categories: –        children with pulmonary hypertension –        children, whose parents have pulmonary hypertension –        children-orphans, whose
Read more
CF “Sister Dalila” thanks everyone, who could have come on November, 18 to the youth organization “Ukrainian youth to Christ’s” lodging and sort plastic corks
News 25 November 2020

CF “Sister Dalila” thanks everyone, who could have come on November, 18 to the youth organization “Ukrainian youth to Christ’s” lodging and sort plastic corks

CF “Sister Dalila” thanks everyone, who could have come on November, 18 to the youth organization “Ukrainian youth to Christ’s” lodging and sort plastic corks. Over ten people came to
Read more
PH symptoms are only the tip of the iceberg
News 16 November 2020

PH symptoms are only the tip of the iceberg

PH symptoms are only the tip of the iceberg To better manage all aspects of a PH diagnosis, it is recommended to not only discuss symptoms with your medical providers,
Read more
The office of CF “Sister Dalila” has started receiving letters to Saint Mykolay from our patients under guardianship. Small and older, who suffered from PH in their way, believe in a miracle very much
News 15 November 2020

The office of CF “Sister Dalila” has started receiving letters to Saint Mykolay from our patients under guardianship. Small and older, who suffered from PH in their way, believe in a miracle very much

    The autumn is finishing and the winter, that will bring not only snow and frost but also long a range of happy winter holidays, will come to us soon.
Read more
CF “Sister Dalila” held a meeting with Lviv regional youth centre
News 13 November 2020

CF “Sister Dalila” held a meeting with Lviv regional youth centre

Charitable Fund “Sister Dalila” has received a medal of the marathon runner for our patient under guardianship Khrystynka Makarchuk from Nova Poshta. Khrystynka overcomes her marathon of struggle every day.
Read more
Within the series of charitable drawings the owner of the lot 4, vitamins “Omega-3” (produced by Norvey), has been announced
News 13 November 2020

Within the series of charitable drawings the owner of the lot 4, vitamins “Omega-3” (produced by Norvey), has been announced

Within the series of charitable drawings the owner of the lot #4, vitamins “Omega-3” (produced by Norvey), has been announced. We congratulate Olga Romanyshyn-Oprysk with the prize 
Read more
At our office you can receive face masks from Pulmonary Hypertension Association Europe
News 13 November 2020

At our office you can receive face masks from Pulmonary Hypertension Association Europe

You can save life by keeping to the elementary rules of your individual health care! You can receive face masks, given to us by Pulmonary Hypertension Association Europe in our
Read more
We have had our third drawing of charitable lots
News 13 November 2020

We have had our third drawing of charitable lots

We have had our third drawing of charitable lots.  
Read more
Story heading “How the Covid-19 pandemic is affecting the life of PH patient?”
News 13 November 2020

Story heading “How the Covid-19 pandemic is affecting the life of PH patient?”

Story heading “What PH patient’s live looks like while the time of COVID-19 pandemic?” To your attention we present a story #5 from Tetiana Venhreniuk, the mother of the child,
Read more
CF “Sister Dalila” is trying to solve the problem with office repairs
News 13 November 2020

CF “Sister Dalila” is trying to solve the problem with office repairs

CF “Sister Dalila” is taking care of PH patients and is renting lodging from Lviv city council at the address: Hlyboka str. 12, c. Lviv (the building was built in
Read more
To your attention the story #4 of Anna Gromilova (diagnosis – PH) about her life during Covid pandemic
News 13 November 2020

To your attention the story #4 of Anna Gromilova (diagnosis – PH) about her life during Covid pandemic

Story heading “What does PH patient’s live look like during COVID-19?” To your attention the story #4 of Anna Gromilova (diagnosis – PH): 1. How possible infection COVID-19 can influence
Read more
Child knitted collection “Bear” is already in hands of the winner of the charitable lot
News 13 November 2020

Child knitted collection “Bear” is already in hands of the winner of the charitable lot

We performed our second drawings of charitable lots.
Read more
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Happy Birthday to You Uliana Malofii!

Happy Birthday to You Uliana Malofii!

News 22 January 2024
Thanks to the support of EURORDIS-Rare Diseases Europe, stationary oxygen concentrators, tonometers, thermoses, power banks were purchased for people with a rare disease – pulmonary hypertension in Ukraine.

Thanks to the support of EURORDIS-Rare Diseases Europe, stationary oxygen concentrators, tonometers, thermoses, power banks were purchased for people with a rare disease – pulmonary hypertension in Ukraine.

News 22 January 2024
The Ministry of Finance, Take the Defence Position Towards the Rare Diseased Patients

The Ministry of Finance, Take the Defence Position Towards the Rare Diseased Patients

News 22 January 2024

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