February 25, 2016 – the second and final day of the Symposium «Multi-stakeholder Symposium on Improving Patient Access to Rare Disease Therapies» 27/02/2016
February 25, 2016 the second and final day of the Symposium «Multi-stakeholder Symposium on Improving Patient Access to Rare Disease Therapies» ( «The symposium of stakeholders to improve access of 24 February 2016 Eurordis started symposium in Brussels, Belgium, entitled: “Multi-stakeholder Symposium on Improving Patient Access to Rare Disease Therapies”
«Eurordis» is a non-governmental alliance that unites patient organizations and people working in the field of rare diseases in order to improve the life quality of all people living with February 29, 2016 Lviv will host the event “Early diagnosis. Detection of pulmonary hypertension”
Press-office of the Lviv city council informs on the event: Lviv will host the event for volunteers “Early diagnosis. Detection of pulmonary hypertension”:http://city-adm.lviv.ua/portal-news/science-and-education/medicine/229578-u-lvovi-dlia-volonteriv-provedut-zakhid-rannia-diahnostyka-vyiavlennia-lehenevoi-hipertenzii. The “daily lviv com” (Press Club, “Daily “In Lviv volunteers will learn about the diagnosis and detection of pulmonary hypertension”
“In Lviv volunteers will learn about the diagnosis and detection of pulmonary hypertension” The event “Early diagnosis. Detection of pulmonary hypertension” is a continuation of the project “Early diagnosis of The program “Give Hope” of “TRK-Lviv” about the event “Results of campaign “Cork for Life in 2015”
The program “Give Hope” of “TRK-Lviv” about the event “Results of campaign “Cork for Life in 2015”: https://www.youtube.com/watch?v=jnLdZtvpMRs. We remind you, that the main result of campaign “Cork for life “15-year-old orphan child suffocates without medication, which the state promised her” – story in the news of “Channel 5”
“15-year-old orphan child suffocates without medication, which the state promised her” – story in the news of “Channel 5”: https://www.youtube.com/watch?v=edwMILxIazw The girl requires heart and lung transplantation. As in Ukraine such LCCF of “Sister Dalila” and PHURDA were informed, that the issue of medicines’ provision for Alina was included in the draft of program “Health” in 2016, where for this purpose the amount of 1.977 million. UAH is provided
The Kiev regional state administration send us a response on providing an orphan Alina Didusenko with vital medicines. The Commissioner of the President of Ukraine for Children’s Rights, Mykola Kuleba, 15 year-old orphan child Alina Didusenko of Kyiv region needs help” – story in the news “TSN” of channel “1 + 1”
The news “TSN” of channel “1 + 1” showed the story about the vital importance of orphan disabled child Alina Didusenko in medicines “Revatio” and “Ventavis”, which cost more than Gratitude to all of those, who helps us with medicines!!!
We thank all of those, who helps us medicines. We appreciate your step towards patients. Medicines, that doesn’t relate to pulmonary hypertension will be passed over to doctors, who know TRK-Lviv’s story about the “Results of “Cork for Life” campaign in 2015″
TRK-Lviv’s story about the “Results of “Cork for Life” campaign in 2015″: https://www.youtube.com/watch?v=tgTxOCNePMw. We thank TV channel TRK Lviv for informational support of campaign “Cork for Life” and highlighting issues of Merry Christmas, dear friends!
MERRY CHRISTMAS! The LCCF’s of “Sister Dаlila” and PHURDA’s team wish Baby Jesus to gave to all of you and your families good health, happiness, spiritual peace, prosperity, faith in December 22, 2015 at a large session hall of Lviv City Council The “Tom Lantos Grant” was launched!!!
December 22, 2015 at a large session hall of Lviv City Council the project of “Early diagnosis of pulmonary hypertension in Lviv region”, funded by the American Association of pulmonary PATIENTS WITH PULMONARY HYPERTENSION IN LVIV REGION WILL GET ONLY 3.689 900 UAH IN 2016???
12 January, 2016 at the Lviv regional council the project “On the regional budget of Lviv region in 2016” will be considered and put to the vote. Appendix 6 of 15-year-old orphan Alina Didusenko needs urgent help!!!
Alina Didusenko hasn’t been provided from the budget with vital medicines “Revatio” and “Ventavis”, total cost of which per month is 120 thousand UAH. As a result of full treatment We sincerely thank “MAU” Airlines for the support of patients with pulmonary hypertension!!!
Dear friends!!! 12.22.2015 at Lviv city council’s large assembly hall under the event “Results of campaign “Cork for Life” in 2015” the ceremony of awarding with gratitude certificates was held. Gift tickets to Aquapark “Beach”
We thank Aquapark “Beach”, represented by Andrian Hutnyk for granted gift tickets to Aquapark “Beach”. THE LONG-AWAITED VICTORY !!! THE PROJECT OF KHRYSTYNA MAKARCHUK AT UKRAINIAN PHILANTHROPIC MARKETPLACE (UPM) GATHERED 34,884 UAH
THE LONG-AWAITED VICTORY !!! THE PROJECT OF KHRYSTYNA MAKARCHUK AT UKRAINIAN PHILANTHROPIC MARKETPLACE (UPM) GATHERED 34,884 UAH., WHICH ARE REQUIRED FOR KHRYSTYNA’S TREATMENT FOR A MONTH, NAMELY FOR PURCHASING OF DEAR FRIENDS! ALL ABOUT THE EVENT “RESULTS OF CAMPAIGN “CORK OF LIFE” in 2015″
22/12/2015 Lviv City Charitable Foundation of “Sister Delila”, PHURDA (NGO “Pulmonary Hypertension – Ukrainian Rare Disease Association”) and Lviv City Center of social services for families, children and youth held The results of campaign “Cork for Life” in 2015 will be summarised at Lviv
22/12/2015 at 11 am Lviv City Charitable Foundation of “Sister Delila”, PHURDA (NGO “Pulmonary Hypertension – Ukrainian Rare Disease Association”) and Lviv City Center of social services for families, children