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Pulmonary Hypertension Ukrainian Rare Disease Association - PHURDA CF Sister Dalila

CF Sister Dalila

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  • Українська
  • Русский
  • English
  •  
  • About us
    • Our history
    • Mission, vision, aims
    • Our team
    • Our membership
    • Our awards
    • Our partners
    • Founding documents
    • Activity reports
      • CF “Sister Dalila”
      • PHURDA
  • CF “Sister Dalila”
    • They need help
    • You helped them
    • We remember them
    • How to help
    • To become a ward
    • Successful stories
  • About PH
    • Classification and WHO functional class
    • What is PAH?
    • What is CTEPH?
    • Symptoms
    • Diagnosis
    • Treatment
    • Therapies
    • ESC/ERS Guidelines
    • Research
    • PH in children
    • PH and pregnancy
  • Get involved
    • Volunteering
    • Awareness campaigns
      • World PH Day
      • PH Awareness month
      • Rare Disease Day
      • Donor Day
      • Previous campaigns/activities
        • Early diagnosis
        • Music for life
    • Advocacy work
      • Expert groups at Ministry of Health
      • Legal support
      • Round tables
    • My PH Library
  • Projects
    • Butterfly in Blue
      • Fashion show
      • Beauty salon
    • Cork for Life
    • O2Kids
    • St. Nicolas Day
    • For coffee
    • Charity Shop
    • Rehabilitation program
    • Fundraising projects
  • News and events
    • Conferences
      • First patient meeting
      • Christmas debates
      • 5 years of activity
    • Mariposa Journal
    • News
    • Support groups for PH patients
  • Contact Us
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“The Best Philanthropists of Lviv region were awarded” – an article on Ukrainian Philanthropists Association website
News 22 March 2016

“The Best Philanthropists of Lviv region were awarded” – an article on Ukrainian Philanthropists Association website

This year, the Angels of kindness came to four bright Lviv philanthropists. It’s Lviv City Charitable Foundation of “Sister Dalila” (nomination “Philanthropist: Regional Charitable Foundation (the organization)”, NGO “Lviv Art
Read more
Charitable Foundation of “Sister Dаlila” has won the “Charitable Lviv Region” competition!!!
News 22 March 2016

Charitable Foundation of “Sister Dаlila” has won the “Charitable Lviv Region” competition!!!

19.03.2016, at the National Theater named after M. Zankovetska, the award ceremony of “Charitable Lviv Region” competition was held. The “Angel of kindness” prize in nomination “Philanthropist: Regional Charitable Foundation
Read more
In Lviv volunteers together with social workers held street informational event, during which they told passers-by about the diagnosis and treatment of pulmonary hypertension
News 22 March 2016

In Lviv volunteers together with social workers held street informational event, during which they told passers-by about the diagnosis and treatment of pulmonary hypertension

In Lviv volunteers together with social workers held street informational event, during which they told passers-by about the diagnosis and treatment of pulmonary hypertension . The event within the project
Read more
We thank Member of Parliament Dubnevych B.V., who has bought portable nebulizer for Tania Fedosiuk
News 22 March 2016

We thank Member of Parliament Dubnevych B.V., who has bought portable nebulizer for Tania Fedosiuk

We thank Member of Parliament Dubnevych B.V., who has bought portable nebulizer for Tania Fedosiuk Here’s what Tatiana said: “I want to thank the CF of “Sister Delila” for the
Read more
“At the Lviv downtown the volunteers urged passers-by to diagnose pulmonary hypertension,” – article on “ZAXIDNET”
News 22 March 2016

“At the Lviv downtown the volunteers urged passers-by to diagnose pulmonary hypertension,” – article on “ZAXIDNET”

At the Lviv downtown the representatives of the Rare Disease Association organized the project “Zebra” – they told passersby about the diagnosis and treatment of pulmonary hypertension and urged them
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TV channels “ZIK”, “TRK-Lviv” and “24” told about Lviv volunteers and social workers in the purple jackets speaking about pulmonary hypertension disease
News 22 March 2016

TV channels “ZIK”, “TRK-Lviv” and “24” told about Lviv volunteers and social workers in the purple jackets speaking about pulmonary hypertension disease

TV channels “ZIK”, “TRK-Lviv” and “24” told about Lviv volunteers and social workers in the purple jackets speaking about pulmonary hypertension disease within the project “Early diagnosis of pulmonary hypertension
Read more
Billboards on the territory of Lviv region within the project “Early diagnosis of pulmonary hypertension in Lviv region”
News 22 March 2016

Billboards on the territory of Lviv region within the project “Early diagnosis of pulmonary hypertension in Lviv region”

The billboards contain a call to action for everyone, who experiences the symptoms typical for pulmonary hypertension, or sees that someone close has ones. Anyone interested in or concerned about
Read more
“Hotline on pulmonary hypertension questions had been launched in Lviv” – article at “galinfo”
News 22 March 2016

“Hotline on pulmonary hypertension questions had been launched in Lviv” – article at “galinfo”

Hotline – (097) -151-09-01 can be used by people who suffer from pulmonary hypertension, their families, volunteers who wish to join the project, and all, who has any questions about
Read more
“Lviv has now a hot line for pulmonary hypertension issues” – article on “Lviv portal”
News 19 March 2016

“Lviv has now a hot line for pulmonary hypertension issues” – article on “Lviv portal”

Within the project “Early diagnosis of pulmonary hypertension in Lviv region”,  supported by the American Association of pulmonary hypertension (PHA) and Tom Lantos Grant, the Support Hotline at (097) -151-09-01
Read more
“Volunteers and social experts will tell Lviv residents about pulmonary hypertension,” – article at Lviv city council website
News 14 March 2016

“Volunteers and social experts will tell Lviv residents about pulmonary hypertension,” – article at Lviv city council website

Tomorrow, March 16, at 2 pm in Lviv downtown, near the Opera House, the event within the project “Early diagnosis of pulmonary hypertension in Lviv region”,  supported by the American
Read more
This is so great!!! We got one package and 6 pills of “Revatio” … !!!
News 9 March 2016

This is so great!!! We got one package and 6 pills of “Revatio” … !!!

We got one package and 6 pills of “Revatio”… It was very touching. We have received the medicines from the family, which would like to stay anonymous. All that we
Read more
Those, who want to enter the higher educational institution and who were diagnosed with pulmonary hypertension are exempt from passing External Independent Testing (EIT)!!!
News 9 March 2016

Those, who want to enter the higher educational institution and who were diagnosed with pulmonary hypertension are exempt from passing External Independent Testing (EIT)!!!

ATTENTION!!! ATTENTION!!! ATTENTION!!! Dear friends: those, who want to enter the higher educational institution and who were diagnosed with pulmonary hypertension or any pathological conditions that have led to persistent
Read more
Gayane Akopian Rubenivna, MD, Professor prepared a presentation “Protection of the gene pool of Ukraine”
News 8 March 2016

Gayane Akopian Rubenivna, MD, Professor prepared a presentation “Protection of the gene pool of Ukraine”

Gayane Akopian Rubenivna, MD, Professor, Deputy Director of Research, Head of Clinical Genetics Department, prepared a presentation “Protection the gene pool of Ukraine:https://www.facebook.com/poryatunok/posts/1748837102014316. Thank you, Akopian G.R. for supporting patients
Read more
Khrystyna Olehivna Semen, MD, prepared a presentation “Pulmonary hypertension. Modern diagnostic approaches”
News 8 March 2016

Khrystyna Olehivna Semen, MD, prepared a presentation “Pulmonary hypertension. Modern diagnostic approaches”

Khrystyna Olehivna Semen, MD, Head of the Internal Medicine Department №2 in Lviv National University named after Danylo Halystkyi, prepared a presentation “Pulmonary hypertension: Modern diagnostic approaches”: https://www.facebook.com/poryatunok/photos/pcb.1748414158723277/1748413432056683/?type=3&theater Thank you, Khrystyna
Read more
The support line of project “Early diagnosis of pulmonary hypertension”-phone (097) -151-09-01
News 5 March 2016

The support line of project “Early diagnosis of pulmonary hypertension”-phone (097) -151-09-01

Within the project “Early diagnosis of pulmonary hypertension” the support line was launched for those, who have questions regarding pulmonary hypertension, namely:  1. What is Pulmonary Hypertension (PH)? 2. What symptoms
Read more
Thank you, dear Natalia Petrychenko!
News 5 March 2016

Thank you, dear Natalia Petrychenko!

Here are the things, we’ve received from Natalia Petrychenko. Each act of help like this is priceless for a patient with pulmonary hypertension. It enables to make life quality better
Read more
THE STATE LOOKS AT THE ORPHAN WITH THE EYES OF DEATH!!!
News 3 March 2016

THE STATE LOOKS AT THE ORPHAN WITH THE EYES OF DEATH!!!

For the past several months, the draft of the program “Health”, which includes the issue of providing an orphan disabled child Alina Didusenko with vital medicines “Revatio” and “Ventavis”, can’t
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Authorial movie by American Association of pulmonary hypertension
News 29 February 2016

Authorial movie by American Association of pulmonary hypertension

To your attention: authorial movie by American Association of pulmonary hypertension of the importance of access to early diagnosis of pulmonary hypertension:  https://www.youtube.com/watch?v=aG2RrSd1QHg.
Read more
The “Early diagnosis of pulmonary hypertension in Lviv region” and the celebration of the International Rare Disease Day
News 29 February 2016

The “Early diagnosis of pulmonary hypertension in Lviv region” and the celebration of the International Rare Disease Day

Today, 29 February 2016, is the International Rare Disease Day. In the building of the Department of Social Welfare of LRSA, the Charitable Foundation of “Sister Delilah” held the event
Read more
THE EDITOR OF PROGRAM “GIVE HOPE”, IRYNA MELESHKO, RECEIVED THE AWARD “VOICE OF CHARITY” 2016
News 26 February 2016

THE EDITOR OF PROGRAM “GIVE HOPE”, IRYNA MELESHKO, RECEIVED THE AWARD “VOICE OF CHARITY” 2016

February 25, 2016, Kyiv, 15 journalists from national and regional mass media received an award for active and professional coverage of philanthropy. The ceremony took place during the Eighth International
Read more
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To your attention a story #3 of Oksana Iakymets (diagnosis – PH) from the story heading about her life during Covid pandemic

To your attention a story #3 of Oksana Iakymets (diagnosis – PH) from the story heading about her life during Covid pandemic

News 13 November 2020
Child knitted collection “Bear” is already in hands of the winner of the charitable lot

Child knitted collection “Bear” is already in hands of the winner of the charitable lot

News 13 November 2020
To your attention the story #4 of Anna Gromilova (diagnosis – PH) about her life during Covid pandemic

To your attention the story #4 of Anna Gromilova (diagnosis – PH) about her life during Covid pandemic

News 13 November 2020

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