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Pulmonary Hypertension Ukrainian Rare Disease Association - PHURDA CF Sister Dalila

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  • Українська
  • Русский
  • English
  •  
  • About us
    • Our history
    • Mission, vision, aims
    • Our team
    • Our membership
    • Our awards
    • Our partners
    • Founding documents
    • Activity reports
      • CF “Sister Dalila”
      • PHURDA
  • CF “Sister Dalila”
    • They need help
    • You helped them
    • We remember them
    • How to help
    • To become a ward
    • Successful stories
  • About PH
    • Classification and WHO functional class
    • What is PAH?
    • What is CTEPH?
    • Symptoms
    • Diagnosis
    • Treatment
    • Therapies
    • ESC/ERS Guidelines
    • Research
    • PH in children
    • PH and pregnancy
  • Get involved
    • Volunteering
    • Awareness campaigns
      • World PH Day
      • PH Awareness month
      • Rare Disease Day
      • Donor Day
      • Previous campaigns/activities
        • Early diagnosis
        • Music for life
    • Advocacy work
      • Expert groups at Ministry of Health
      • Legal support
      • Round tables
    • My PH Library
  • Projects
    • Butterfly in Blue
      • Fashion show
      • Beauty salon
    • Cork for Life
    • O2Kids
    • St. Nicolas Day
    • For coffee
    • Charity Shop
    • Rehabilitation program
    • Fundraising projects
  • News and events
    • Conferences
      • First patient meeting
      • Christmas debates
      • 5 years of activity
    • Mariposa Journal
    • News
    • Support groups for PH patients
  • Contact Us
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September 24, 2016 in Lviv medicine genious of Ukraine and Poland spoke about Chronic thromboembolic pulmonary hypertension (TEPH). LCCF of “Sister Delila”, PHURDA implemented the project “Breath of Success”
News 25 September 2016

September 24, 2016 in Lviv medicine genious of Ukraine and Poland spoke about Chronic thromboembolic pulmonary hypertension (TEPH). LCCF of “Sister Delila”, PHURDA implemented the project “Breath of Success”

September 24, 2016 in Lviv genious of medicine of Ukraine and Poland spoke about Chronic thromboembolic pulmonary hypertension (TEPH). It was the second day of the Nationwide Conference dedicated to
Read more
23 сентября 2016 в г. Львове (гостиница “RIUS”) началась Всеукраинская Конференция посвящена 50-летию Львовской сердечной хирургии
News 22 September 2016

23 сентября 2016 в г. Львове (гостиница “RIUS”) началась Всеукраинская Конференция посвящена 50-летию Львовской сердечной хирургии

September 23, 2016 in Lviv (“RIUS” hotel) the Nationwide conference devoted to the 50th anniversary of the Lviv heart surgery have started. Conference organizers are the following: Ukrainian Lviv Regional
Read more
LCCF of  “Sister Dalila” managed to make government to allocate funds for the treatment of an orphan child
News 30 August 2016

LCCF of “Sister Dalila” managed to make government to allocate funds for the treatment of an orphan child

LCCF of  “Sister Delila” managed to make government to allocate funds for the treatment of an orphan child: http://www.ufb.org.ua/sektor-blagodijnosti/blagodijni-organizacii/novini-v-ukraini-blagodijnix-organizacij.htm?id=4736 16-year-old orphan child Alina Didusenko, the ward of Lviv City Charitable Foundation
Read more
PHA Europe in the journal “Mariposa” noted LCCF of “Sister Dalila”, PHURDA as being those, who directly in Lviv joined the celebration of the World PH Day
News 30 August 2016

PHA Europe in the journal “Mariposa” noted LCCF of “Sister Dalila”, PHURDA as being those, who directly in Lviv joined the celebration of the World PH Day

European Association of pulmonary hypertension (PHA Europe) in the summer edition of the journal “Mariposa”  noted LCCF of “Sister Delila”, PHURDA as being those, who directly in Lviv joined the
Read more
We thank Frankivsk Department of Social Work and an employee Evgeniy for coordinating the Campaign “Cork for Life”, so the new participants could get involved into the campaign
News 14 August 2016

We thank Frankivsk Department of Social Work and an employee Evgeniy for coordinating the Campaign “Cork for Life”, so the new participants could get involved into the campaign

Welcome new member of the Campaign “Cork for Life” – LVIV REGIONAL LIBRARY FOR CHILDREN. We believe that cooperation with the Lviv regional library for children will be active and
Read more
We thank secondary school №90 (Sykhiv District) for participation in the Campaign “Cork for life” and caring for patients with pulmonary hypertension
News 14 August 2016

We thank secondary school №90 (Sykhiv District) for participation in the Campaign “Cork for life” and caring for patients with pulmonary hypertension

Special thank goes to our volunteer of the campaign “Cork for Life” in Sykhiv District – Julia, who delivered the collected plastic corks from secondary school №90 to the office
Read more
Hooray! The campaign “Cork for Life”! We handed over – 480 kg of plastic corks! And received – 4800 UAH!
News 14 August 2016

Hooray! The campaign “Cork for Life”! We handed over – 480 kg of plastic corks! And received – 4800 UAH!

We need more than half a ton of plastic corks to receive enough money to purchase an oxygen concentrator for the patient with pulmonary hypertension: http://medlabteh.com.ua/ru/kisneve-obladnannya/kisnevi-kontsentratori/kislorodnyj-kontsentrator-biomed-7f-3-detail. We thank everyone who
Read more
Anastasiya Vlasyuk needs your help
News 11 August 2016

Anastasiya Vlasyuk needs your help

In the month the child needs 1.5 packages of medication “Revatio”, the general price of 36000 UAH. Her mother can’t afford it.
Read more
We thank active volunteers, who brought so many plastic corks to Lviv City center of social services for families, children and youth
News 9 August 2016

We thank active volunteers, who brought so many plastic corks to Lviv City center of social services for families, children and youth

Together we can help patients with pulmonary hypertension. “There’s no someone else’s misfortune” (ukrainan proverb) are golden words. By leaving corks in the container, you can save a life!!!
Read more
Guys from the Derzhiv village (Mykolayiv district, Lviv region) contributed to the rescue of patients with pulmonary hypertension
News 8 August 2016

Guys from the Derzhiv village (Mykolayiv district, Lviv region) contributed to the rescue of patients with pulmonary hypertension

Many thanks to you for the corks you brought from Poland in order to support the campaign “Cork for Life”. Special thanks to Deputy of Mykolaiv District Council – Oksana
Read more
The consent to donate organs after death is the greatest act of love because it can save someone’s LIFE!!!
News 8 August 2016

The consent to donate organs after death is the greatest act of love because it can save someone’s LIFE!!!

ARE YOU “FOR” ORGAN TRANSPLANTATION???: https://www.youtube.com/watch?v=yF4MK1qu6p0
Read more
Here’s updates on Kiev regional program “Health” in 2016, which includes the issue of provision with free medicines an orphan Alina Didusenko
News 7 August 2016

Here’s updates on Kiev regional program “Health” in 2016, which includes the issue of provision with free medicines an orphan Alina Didusenko

July 15, 2016 the winners of the tender LLC “BADM-B” (Lot 1 – “VENTAVIS”) and LLC “Lyudmila-Pharm” (Lot 2 – “REVATIO”) signed the purchase agreements. The amount specified in the
Read more
Here’s presentation by NGO “Vseukrainskyi Mist Yednosti” on amendments to the Law of Ukraine “On transplantation of organs and other anatomic human materials”, as amended by the DOH of Ukraine
News 6 August 2016

Here’s presentation by NGO “Vseukrainskyi Mist Yednosti” on amendments to the Law of Ukraine “On transplantation of organs and other anatomic human materials”, as amended by the DOH of Ukraine

Changes include the “presumption of consent” in which any competent person during its life has the right  to write a statement to deny donation of his organs or tissues after
Read more
Join the Campaign “Cork for Life”, it’s so easy)))) All you need is willing!!!
News 28 July 2016

Join the Campaign “Cork for Life”, it’s so easy)))) All you need is willing!!!

NGO “Mykolaivska Narodna Samooborona” and Campaign “Cork for Life”.
Read more
Thank to you, dear participants of campaign “Cork for Life”, we have achieved the desired result. We managed to get oxygen generator for our ward, lviv citizen – Oksana Melnyk
News 27 July 2016

Thank to you, dear participants of campaign “Cork for Life”, we have achieved the desired result. We managed to get oxygen generator for our ward, lviv citizen – Oksana Melnyk

After passing plastic corks to the recycling company, we received 10,045 UAH. The cost of the generator in Ukraine is 13 357 UAH, we were able to buy it for
Read more
Mykolaiv district hospital actively joins overcoming of the informative barrier of pulmonary hypertension
News 26 July 2016

Mykolaiv district hospital actively joins overcoming of the informative barrier of pulmonary hypertension

The clinic got brochures about pulmonary hypertension for patients and carers. This interactive tool (brochures) will be useful to those who have relevance to pulmonary hypertension. We can send it
Read more
Dear friends! Here’s a list of documents needed for the Commission DOH in Ukraine to consider referral to treatment abroad
News 17 July 2016

Dear friends! Here’s a list of documents needed for the Commission DOH in Ukraine to consider referral to treatment abroad

Sending the citizens of Ukraine (of any categories of patients without differentiation for children, adults, military) for treatment abroad is subject to the requirements of the procedure for sending citizens
Read more
“People have twisted view of deceased donation” – Academician Gotie on presumed consent, children’s bodies and black transplantation
News 17 July 2016

“People have twisted view of deceased donation” – Academician Gotie on presumed consent, children’s bodies and black transplantation

The main problem is citizens ignorance and prejudices to transplantation. Thus, Russia adopted a presumption of consent, when the relatives consent isn’t required for taking organs. Mostly it was a
Read more
Transplantation? I vote yes! “Transplants save lives”
News 17 July 2016

Transplantation? I vote yes! “Transplants save lives”

In our country, tens of thousands need transplantation of organs, but during a year only few operations are conducted (https://www.youtube.com/watch?v=ssp7YFiy6pI). Transplantation is required both for adults and children, just ordinary
Read more
This is the number corks we received from Lviv city center of social services for families, children and youth
News 15 July 2016

This is the number corks we received from Lviv city center of social services for families, children and youth

We thank Oksana Rubai and social services center staff, volunteers who collect “corks for life!”  
Read more
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CF “Sister Dalila” needs help of volunteers for sorting of plastic corks

CF “Sister Dalila” needs help of volunteers for sorting of plastic corks

News 25 November 2020
CF “Sister Dalila” offers wonderful cloth masks for a charitable donation

CF “Sister Dalila” offers wonderful cloth masks for a charitable donation

News 25 November 2020
PH symptoms are only the tip of the iceberg

PH symptoms are only the tip of the iceberg

News 16 November 2020

PHURDALCCF Sister Dalila

«Ми ставимо перед собою багато цілей, та найголовніше, що хотілося б донести – немає безвихідних ситуацій і немає приречених людей – є чиясь байдужість. Але варто зробити маленький крок назустріч ближньому і завтрашній день обов’язково подарує надію»

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