It’s time for 5th session of rehab !!!
Again two weeks are over) It’s time for 5th session of rehab !!! Hurray November 23, our ward from Rivne – Olga Novak passed away.
Despite the difficult condition, the woman actively advocated the position of patients with pulmonary hypertension in Rivne. Recently, Olga expressed concern that she had no medicine and that she was 100 days left to the World Rare Diseases Day!
100 days left to the World Rare Diseases Day! Everyone can join! Theme of this Year: Bridging health and social care – “The combination of health and social security” Want Buy medicines yourself !!!
Buy medicines yourself !!! How long will this “theater of absurdity” continue? Again, there is no medicines for pulmonary hypertension, namely sildenafil. Public procurement by the Ministry of Health does Proper nutrition for PH patients
For PH Patients about proper nutrition Daily diet: – Water no more than 8 glasses per day. – Limit of salt, no more than 2.5 g. for 1 day (1 November 14 – Rehab: Session 4
So again, it’s time for a regular session of a rehab program for PH patients. Already traditionally we meet at 10.30 in the Anna Mazurenko Children’s Health Center. We are waiting On November 10, the fashion show of Lviv designer Olesya Marchuk & Butterfly in Blue took place in Lutsk.
November 10 in Lutsk at the Korsakiv’s Museum of Contemporary Ukrainian Art, a fashion show of the Lviv designer Olesya Marchuk & Butterfly in Blue took place.In Lutsk we arrived “A lot of good” – special guests came to us on
“A lot of good” Special guests came to see us today. We got clothes, toys and kids’ sweets. And soon all those things will get those who need it most.
Pankiv Vasyl
Pankiv Vasyl Yaroslavovych, born in 1972. Together with his family lives in Lviv. All his life he was active, he had two jobs. “Butterfly in Blue” at Lviv Fashion Week
During the Lviv Fashion Week – 2018 (LFW), Olesya Marchuk & «Butterfly in blue» took place. Olesya Marchuk is a fashion designer with a great heart and soul. Olesya Marchuk Patient PH associations from the Baltic countries plus some neighboring countries met in Vilnius
Report from Vilnius meeting The Lithuanian patient association invited associations from the Baltic countries plus some neighboring countries to a meeting in their capital Vilnius on Friday October 19th. Representatives First evidence that soot from polluted air is reaching placenta
Evidence of tiny particles of carbon, typically created by burning fossil fuels, has been found in placentas for the first time, in new research presented today (Sunday) at the European Participation in ERS Congress September 15-19 in Paris
European Respiratory Society (ERS) – an organization founded by doctors. During the Congress, over 420 sessions of reports from doctors related to various respiratory diseases were presented. There were posters Representatives of the “Sister Dalila” Charity Foundation, PHURDA participated in the ELF Network Patient Organization Day in Paris
Representatives of the “Sister Dalila” Charity Foundation, PHURDA at the invitation of the ELF (European Lung Foundation), joined the ELF Network Patient Organization Day, which took place within the framework September 13th to 16th annual PHA Europe conference took place in Berlin
The annual PHA Europe conference was held in Berlin September 13th to 16th. A patient, Viktoria Burbura, represented the «Sister Dalila» Charity Foundation and PHURDA at the conference. Traditionally, the Ethno Fashion Show “Butterfly in blue” in Toronto (Canada) with the participation of models with pulmonary hypertension in Ukraine
On September 14-16, 2018, the “Butterfly in blue” Etno Fashion Show took place in Toronto, Canada, during the Bloor West Village Ukrainian Festival with the participation of models of pulmonary “First Western” TV channel – Oksana Melnyk about life with pulmonary hypertension
“First Western” TV channel – Oksana Melnyk about life with pulmonary hypertensionhttps://www.youtube.com/watch?v=PCE95vYUCyA&t=1s 2018 BWV Toronto Ukrainian Festival – Ethno Fashion Show
2018 BWV Toronto Ukrainian Festival – Ethno Fashion Show “Butterfly in blue”: “We are going to talk about a special color – blue. Blue is a bit more serious. We On September 18 we visited the poster room
On September 18 we visited the poster room. Clinics, hospitals, medical centers and pharmaceutical companies presented their latest data on the research. It is especially striking when it comes to