We keep you up-to-date about the happenings on the field of PH and rare diseases and provide you with healthcare-related news in Ukraine and beyond.
#BOTTOM, or what will happen to orphan patients in 2020?
The draft of budget 2020 left thousands of patients with rare and chronic diseases without reatment. -The briefing showed how humiliating In the meantime, there are those who defend the position of orphan patients within the facilities of the renewed Ministry of Health.
In the meantime, there are those who defend the position of orphan patients within the facilities of the renewed Ministry Well defended!
Well defended!MP Olga Stefanyshyn, “Patients of Ukraine”, CF “Sister Dalila”, Pulmonary Hypertension Ukrainian Rare Disease Association – PH Urda, deputies The position of Borys Todurov regarding the development of transplantation in Ukraine.
The position of Borys Todurov regarding the development of transplantation in Ukraine. https://gazeta.ua/articles/health/_a-proshu-u-deputativ-ne-groshej-a-zmin-u-zakoni-todurov/721502?fbclid=IwAR08FAzFycv7zyG8BleX0E1sWAQI5RAtLJH3ExGMz6Uso08MFCkbRta2xcI Finally we have news that causes the joy of patients and patient organizations
Finally we have news that causes the joy of patients and patient organizations This is a very important victory that We are very concerned about the situation in the financing of orphan nosology and it must be corrected immediately.
We are very concerned about the situation in the financing of orphan nosology and it must be corrected immediately.I wonder Unexpectedly quickly the new MOH wants to leave thousands of Ukrainians with rare nosologies to DIE!!!
Unexpectedly quickly the new MOH wants to leave thousands of Ukrainians with rare nosologies to DIE!!! – it’s inhuman -incompetent-irresponsibly PH patients, we invite you to continue the rehabilitation program on October 2 !!!
PH patients, we invite you to continue the rehabilitation program on October 2 !!! If you missed the first meetings, September 17 was held in Ukraine as the “Patient Safety Day”
September 17 was held in Ukraine as the “Patient Safety Day” proclaimed by President of Ukraine Mr. Volodymyr Zelensky.On this