News
We keep you up-to-date about the happenings on the field of PH and rare diseases and provide you with healthcare-related news in Ukraine and beyond.

COVID – 19 March update from WHO
Everything you need to know about Covid-19March update from WHO https://www.youtube.com/watch?v=JKpVMivbTfg&fbclid=IwAR1q2eSJKi-SQ4Udmi3TmXwEESNTkCS5GKSbG4rT_heFI-sWNnH2tv-A55M
The Ukrainian Medical Society in Lviv became a platform for communication on orphan diseases
The Ukrainian Medical Society in Lviv became a platform for communication on orphan diseases with the active assistance of the
At the office of CF “Sister Dalila” there was held a workshop of making a leaflet
At the office of CF “Sister Dalila” there was held a workshop of making a leaflet with the participation of
The Pulmonary Hypertension Association of Europe reports and warns about the coronavirus
Dear PH community!The Pulmonary Hypertension Association of Europe reports and warns about the COVID-19 coronavirus situation. Professor Marion Delcroix and Prof. Mark
On Rare Disease Day – February 29th The Orphan Bell movement got its own logo
On Rare Diseases Day – February 29, the # orphan bell movement received its own logo !!!Not only did we
The meeting of the Commission for Social Protection of the Population and ATO Participants at the Lviv Regional State Administration was held.
The meeting of the Commission for Social Protection of the Population and ATO Participants at the Lviv Regional State Administration
Pulmonary hypertension is one of the 8,000 rare and incurable diseases
Pulmonary hypertension is one of the 8,000 rare and incurable diseases. Setting a correct diagnosis takes about three years. Treatment
It is very important that the PAH is diagnosed as soon as possible
It is very important that the PAH is diagnosed and treatment started as soon as possible, because if to be
Within the “Orphan bell” the first billboard is already located in Lviv
Within the “Orphan bell” the first billboard with a patient of pulmonary hypertension – Mira Dzubinska is already located in