The first day in the program is the adoption of new members, the reports of PHA Europe, the election of the PHA Europe Board.

The second day is a real information fountain.

Representative of the Association told about their achievements. The president of the Association of Macedonia spoke about cooperation with health officials. They also talked about medicine communities, associations of rare diseases, patient organizations, and medicine agencies.

We learned a lot from these reports, presentations and discussions

Pisana Ferrari mentioned the importance of learning at various trainings and schools. The graduates of SUMMER SCHOOL, Eurordis, for specially selected associations were also noted. By the way, already 4 members of PHA Europe: Lithuania, Latvia Hungary and Ukraine, had the honor to be graduates of SUMMER SCHOOL.

Impressions are overwhelming. After all, thanks to the annual Conference in Barcelona, we have the opportunity to share our achievements, gain experience from other associations in advocating the rights of patients with PH, communication with health officials.

In a brochure on transboundary cooperation, we talked about the goals and objectives of the signed memorandum between the Norwegian and Ukrainian Associations.

It was interesting to hear the results of the cooperation of the regional united Balkan groups and the mentoring program.

Over 10 associations have talked about fundraising in their countries.

We talked about charitable, fundraising projects:

– “The Cork for life”;

– “The cup of coffee”;

– “Hope Envelope”;

– “Benefactor-CharityShop”;

– “Silent auction” – within the World PH Day;

– Auctions in Norway- thank Olesia Marchuk.

Thanks PHA Europe for the opportunity to study for patients with pulmonary hypertension in Ukraine!