![“Pulmonary Hypertension in Children” – a patients meeting for patients with PH!](https://poryatunok.info/wp-content/uploads/sister-dalila-news-default-pic-1.png)
“Pulmonary Hypertension in Children” – a patients meeting for patients with PH!
A meeting was held for parents of children with pulmonary hypertension (PH) on the topic: “Pulmonary hypertension in children”. During the meeting: the pediatric cardiologist of the pediatric cardiosurgical department![Congratulations to Olha Tsap on her Birthday!](https://poryatunok.info/wp-content/uploads/425501552_3767130613573670_4043191809560812989_n.jpg)
Congratulations to Olha Tsap on her Birthday!
On behalf of the community of people with pulmonary hypertension and the Team of “Sister Dalila” Charitable Foundation, the Association of Pulmonary Hypertension, we sincerely congratulate Olha Tsap on her![Infinite gratitude to Nova Poshta Humanitarian!](https://poryatunok.info/wp-content/uploads/425656964_3765608043725927_6334578974716444656_n.jpg)
Infinite gratitude to Nova Poshta Humanitarian!
The war in Ukraine mobilizes all our forces, efforts for daily support of our patients – people with a rare disease of pulmonary hypertension throughout Ukraine. Recently diagnosed children and![The Cork for Life Campaign!](https://poryatunok.info/wp-content/uploads/424569266_3761637480789650_6056023744800012325_n-1.jpg)
The Cork for Life Campaign!
We are sincerely grateful to the Galbuzhitloservice Management Company and all residents for the active collection of plastic corks, as part of the Cork for Life Campaign, in order to![Fine and sincere gratitude to the school staff and students of the Lyceum 52!](https://poryatunok.info/wp-content/uploads/423195028_3761651077454957_1262784813763696507_n.jpg)
Fine and sincere gratitude to the school staff and students of the Lyceum 52!
Unlimited and sincere gratitude to the school staff and students of the Lyceum 52! Lyceum 52 of the Lviv City Council. You have already managed to sort by color more![A memorandum of Cooperation between the Association of Pulmonary Hypertension and the Lviv Regional Center for Disease Control and Prevention (Lviv Center for Disease Control and Prevention of the Ministry of Health)](https://poryatunok.info/wp-content/uploads/421678098_3757461337873931_2596230895109919071_n-1.jpg)
A memorandum of Cooperation between the Association of Pulmonary Hypertension and the Lviv Regional Center for Disease Control and Prevention (Lviv Center for Disease Control and Prevention of the Ministry of Health)
A memorandum of cooperation between the Association of Pulmonary Hypertension and the Lviv Regional Center for Disease Control and Prevention (Lviv Center for Disease Control and Prevention of the Ministry![Unlimited and sincere gratitude to the school staff and students!](https://poryatunok.info/wp-content/uploads/420741987_3756831697936895_6581123770295613348_n-1.jpg)
Unlimited and sincere gratitude to the school staff and students!
Unlimited and sincere gratitude to the school staff and students! Lyceum 52 of the Lviv City Council for carrying out an action to sort plastic corks by color, as part![Happy Birthday to You Uliana Malofii!](https://poryatunok.info/wp-content/uploads/421139819_3755696284717103_7087495724756815068_n.jpg)
Happy Birthday to You Uliana Malofii!
Happy Birthday to you Uliana!!! Take our sincere congrats from the team of Lviv City Charitable Foundation and Pulmonary Hypertension Association on your birthday! We wish God’s blessing, health, faith,![Thanks to the support of EURORDIS-Rare Diseases Europe, stationary oxygen concentrators, tonometers, thermoses, power banks were purchased for people with a rare disease – pulmonary hypertension in Ukraine.](https://poryatunok.info/wp-content/uploads/420193324_3754136551539743_6203697950631134954_n-1.jpg)
Thanks to the support of EURORDIS-Rare Diseases Europe, stationary oxygen concentrators, tonometers, thermoses, power banks were purchased for people with a rare disease – pulmonary hypertension in Ukraine.
Thanks to the support of EURORDIS-Rare Diseases Europe, stationary oxygen concentrators, tonometers, thermoses, power banks were purchased for people with a rare disease – pulmonary hypertension in Ukraine. Thanks to![The Ministry of Finance, Take the Defence Position Towards the Rare Diseased Patients](https://poryatunok.info/wp-content/uploads/419336429_764603782363107_8232803795129133719_n.jpg)
The Ministry of Finance, Take the Defence Position Towards the Rare Diseased Patients
Ministry of Finance of Ukraine, take the defence position towards the seriously ill patients. These are thousands of human lives. It is very difficult to find words when a person![St. Nicholas found mediators on Earth to Give Presents to Children from PH Community](https://poryatunok.info/wp-content/uploads/412081086_3734175006869231_4569249295685198868_n-2.jpg)
St. Nicholas found mediators on Earth to Give Presents to Children from PH Community
This year, St. Nicholas the Wonderworker, through his mediators on earth, congratulated the children of the community of Charitable Foundation “Sister Dalila”, Pulmonary Hypertension Association with generous gifts. Children’s joy,![The Program of Medical Guarantees (MPG) vs. National Health Service and Transplatation](https://poryatunok.info/wp-content/uploads/412902001_3734475150172550_84170911385671722_n-2.jpg)
The Program of Medical Guarantees (MPG) vs. National Health Service and Transplatation
Recently, the National Health Service of Ukraine (NHSU) presented to the public and patient organizations a public report for 2 years of activity and told about further steps for the![A Joint Coordinative Meeting Eurordis-Rare Diseases Europe-Ukrainian Rare Diseases](https://poryatunok.info/wp-content/uploads/414112505_3736988676587864_6900419820817513762_n-1.jpg)
A Joint Coordinative Meeting Eurordis-Rare Diseases Europe-Ukrainian Rare Diseases
On December the 20th, a joint coordinative meeting between the representative of Eurordis-Rare Diseases Europe – Anna Boyko and representatives of patient organizations for rare diseases of Ukraine took place.![“The Road Map for a PH Patient”- a Patient Meeting](https://poryatunok.info/wp-content/uploads/414112505_3736988676587864_6900419820817513762_n-1-1.jpg)
“The Road Map for a PH Patient”- a Patient Meeting
The PH patients meeting on the topic: “Roadmap for a patient with PH” has taken place. The meeting was held by the cardiologist, MD – Irina Zhyvylo and the cardiologist,![Merry Christmas!](https://poryatunok.info/wp-content/uploads/Merry-Christ.jpg)
Merry Christmas!
We support people with a rare disease — pulmonary hypertension, we try to improve their quality of life. A child with pulmonary hypertension in Lviv region and a woman with![Oxygen Therapy at Home for 2 PH Patients](https://poryatunok.info/wp-content/uploads/414806325_3739985299621535_7789578087968110186_n.jpg)
Oxygen Therapy at Home for 2 PH Patients
We support people with a rare disease — pulmonary hypertension, we try to improve their quality of life. A child with pulmonary hypertension in Lviv region and a woman with![Congratulations on the New Year!](https://poryatunok.info/wp-content/uploads/Merry-Christ.jpg)
Congratulations on the New Year!
“Sister Dalila” Charitable Foundation , Pulmonary Hypertension Association — PHURDA and the community of PH patients sincerely congratulate you on the coming New Year. We wish you and your family![We sincerely grateful to TRC “PERSYI ZACHIDNYI” for Enagement and Help](https://poryatunok.info/wp-content/uploads/viber_image_2024-01-09_14-34-47-542-2.jpg)
We sincerely grateful to TRC “PERSYI ZACHIDNYI” for Enagement and Help
We sincerely grateful to TRC “PERSYI ZACHIDNYI” for the collection of plastic corks and informational support, popularization of the Cork for Life Campaign to support children and adults with a![The drug Bosentan 125 mg Pharmascience Inc., Canada, in the amount of 95,100 tablets (1,585 packages) was delivered by the manufacturer to Ukraine for the 2023 budget costs, already distributed by Medical Procurement of Ukraine.](https://poryatunok.info/wp-content/uploads/416103777_3746893702264028_7833080245938773663_n.jpg)
The drug Bosentan 125 mg Pharmascience Inc., Canada, in the amount of 95,100 tablets (1,585 packages) was delivered by the manufacturer to Ukraine for the 2023 budget costs, already distributed by Medical Procurement of Ukraine.
The drug Bosentan 125 mg Pharmascience Inc., Canada, in the amount of 95,100 tablets (1,585 packages) was delivered by the manufacturer to Ukraine for the 2023 budget costs, already distributed![We take daily efforts to support people with a rare disease – pulmonary hypertension, and provide them with vital medicines. Also, whenever possible, we give medicine for fever and pain for the military.](https://poryatunok.info/wp-content/uploads/417172370_3747031425583589_2398383518022809161_n.jpg)