“Pulmonary Hypertension in Children” – a patients meeting for patients with PH!

A meeting was held for parents of children with pulmonary hypertension (PH) on the topic: “Pulmonary hypertension in children”. During the meeting: the pediatric cardiologist of the pediatric cardiosurgical department

Congratulations to Olha Tsap on her Birthday!

On behalf of the community of people with pulmonary hypertension and the Team of  “Sister Dalila” Charitable Foundation, the Association of Pulmonary Hypertension, we sincerely congratulate Olha Tsap on her

Infinite gratitude to Nova Poshta Humanitarian!

The war in Ukraine mobilizes all our forces, efforts for daily support of our patients – people with a rare disease of pulmonary hypertension throughout Ukraine. Recently diagnosed children and

The Cork for Life Campaign!

We are sincerely grateful to the Galbuzhitloservice Management Company and all residents for the active collection of plastic corks, as part of the Cork for Life Campaign, in order to

Fine and sincere gratitude to the school staff and students of the Lyceum 52!

Unlimited and sincere gratitude to the school staff and students of the Lyceum 52! Lyceum 52 of the Lviv City Council. You have already managed to sort by color more

Unlimited and sincere gratitude to the school staff and students!

Unlimited and sincere gratitude to the school staff and students! Lyceum 52 of the Lviv City Council for carrying out an action to sort plastic corks by color, as part

Happy Birthday to You Uliana Malofii!

Happy Birthday to you Uliana!!! Take our sincere congrats from the team of Lviv City Charitable Foundation and Pulmonary Hypertension Association on your birthday! We wish God’s blessing, health, faith,

Thanks to the support of EURORDIS-Rare Diseases Europe, stationary oxygen concentrators, tonometers, thermoses, power banks were purchased for people with a rare disease – pulmonary hypertension in Ukraine.

Thanks to the support of EURORDIS-Rare Diseases Europe, stationary oxygen concentrators, tonometers, thermoses, power banks were purchased for people with a rare disease – pulmonary hypertension in Ukraine. Thanks to

The Ministry of Finance, Take the Defence Position Towards the Rare Diseased Patients

Ministry of Finance of Ukraine, take the defence position towards the seriously ill patients. These are thousands of human lives. It is very difficult to find words when a person

“The Road Map for a PH Patient”- a Patient Meeting

The PH patients meeting on the topic: “Roadmap for a patient with PH” has taken place. The meeting was held by the cardiologist, MD – Irina Zhyvylo and the cardiologist,

Merry Christmas!

We support people with a rare disease — pulmonary hypertension, we try to improve their quality of life. A child with pulmonary hypertension in Lviv region and a woman with

Oxygen Therapy at Home for 2 PH Patients

We support people with a rare disease — pulmonary hypertension, we try to improve their quality of life. A child with pulmonary hypertension in Lviv region and a woman with

Congratulations on the New Year!

“Sister Dalila” Charitable Foundation , Pulmonary Hypertension Association — PHURDA and the community of PH patients sincerely congratulate you on the coming New Year. We wish you and your family

We sincerely grateful to TRC “PERSYI ZACHIDNYI” for Enagement and Help

We sincerely grateful to TRC “PERSYI ZACHIDNYI” for the collection of plastic corks and informational support, popularization of the Cork for Life Campaign to support children and adults with a

The drug Bosentan 125 mg Pharmascience Inc., Canada, in the amount of 95,100 tablets (1,585 packages) was delivered by the manufacturer to Ukraine for the 2023 budget costs, already distributed by Medical Procurement of Ukraine.

The drug Bosentan 125 mg Pharmascience Inc., Canada, in the amount of 95,100 tablets (1,585 packages) was delivered by the manufacturer to Ukraine for the 2023 budget costs, already distributed

We take daily efforts to support people with a rare disease – pulmonary hypertension, and provide them with vital medicines. Also, whenever possible, we give medicine for fever and pain for the military.

We take daily efforts to support people with a rare disease – pulmonary hypertension, and provide them with vital medicines. Also, whenever possible, we give medicine for fever and pain

Lviv Region – Budget 2024

Lviv region – budget 2024 In 2024, the budget of the Lviv region provides for the treatment of people with pulmonary hypertension -1,480,000 UAH. We express our sincere gratitude to

National Health Service of Ukraine presented 2 years activity report to the public

Recently, the National Health Service of Ukraine (NHSU) presented to the public and patient organizations a public report for 2 years of activity and told about further steps for the

A Joint Coordinative Meeting between EURORDIS and Ukrainian Rare Diseases Organizations

On December the 20th, a joint coordinative meeting between the representative of Eurordis-Rare Diseases Europe – Anna Boyko and representatives of patient organizations for rare diseases of Ukraine took place.