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CF Sister Dalila

Find a local specialist
Pulmonary Hypertension Ukrainian Rare Disease Association - PHURDA CF Sister Dalila

CF Sister Dalila

+38 097 151 09 01
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Find a local specialist
  • Українська
  • Русский
  • English
  •  
  • About us
    • Our history
    • Mission, vision, aims
    • Our team
    • Our membership
    • Our awards
    • Our partners
    • Founding documents
    • Activity reports
      • CF “Sister Dalila”
      • PHURDA
  • CF “Sister Dalila”
    • They need help
    • You helped them
    • We remember them
    • How to help
    • To become a ward
    • Successful stories
  • About PH
    • Classification and WHO functional class
    • What is PAH?
    • What is CTEPH?
    • Symptoms
    • Diagnosis
    • Treatment
    • Therapies
    • ESC/ERS Guidelines
    • Research
    • PH in children
    • PH and pregnancy
  • Get involved
    • Volunteering
    • Awareness campaigns
      • World PH Day
      • PH Awareness month
      • Rare Disease Day
      • Donor Day
      • Previous campaigns/activities
        • Early diagnosis
        • Music for life
    • Advocacy work
      • Expert groups at Ministry of Health
      • Legal support
      • Round tables
    • My PH Library
  • Projects
    • Butterfly in Blue
      • Fashion show
      • Beauty salon
    • Cork for Life
    • O2Kids
    • St. Nicolas Day
    • For coffee
    • Charity Shop
    • Rehabilitation program
    • Fundraising projects
  • News and events
    • Conferences
      • First patient meeting
      • Christmas debates
      • 5 years of activity
    • Mariposa Journal
    • News
    • Support groups for PH patients
  • Contact Us
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“Pulmonary Hypertension in Children” – a patients  meeting for patients with PH!
News 8 February 2024

“Pulmonary Hypertension in Children” – a patients meeting for patients with PH!

A meeting was held for parents of children with pulmonary hypertension (PH) on the topic: “Pulmonary hypertension in children”. During the meeting: the pediatric cardiologist of the pediatric cardiosurgical department
Read more
Congratulations to Olha Tsap on her Birthday!
News 8 February 2024

Congratulations to Olha Tsap on her Birthday!

On behalf of the community of people with pulmonary hypertension and the Team of  “Sister Dalila” Charitable Foundation, the Association of Pulmonary Hypertension, we sincerely congratulate Olha Tsap on her
Read more
Infinite gratitude to Nova Poshta Humanitarian!
News 5 February 2024

Infinite gratitude to Nova Poshta Humanitarian!

The war in Ukraine mobilizes all our forces, efforts for daily support of our patients – people with a rare disease of pulmonary hypertension throughout Ukraine. Recently diagnosed children and
Read more
The Cork for Life Campaign!
News 5 February 2024

The Cork for Life Campaign!

We are sincerely grateful to the Galbuzhitloservice Management Company and all residents for the active collection of plastic corks, as part of the Cork for Life Campaign, in order to
Read more
Fine and sincere gratitude to the school staff and students of the Lyceum 52!
News 5 February 2024

Fine and sincere gratitude to the school staff and students of the Lyceum 52!

Unlimited and sincere gratitude to the school staff and students of the Lyceum 52! Lyceum 52 of the Lviv City Council. You have already managed to sort by color more
Read more
Unlimited and sincere gratitude to the school staff and students!
News 26 January 2024

Unlimited and sincere gratitude to the school staff and students!

Unlimited and sincere gratitude to the school staff and students! Lyceum 52 of the Lviv City Council for carrying out an action to sort plastic corks by color, as part
Read more
Happy Birthday to You Uliana Malofii!
News 22 January 2024

Happy Birthday to You Uliana Malofii!

Happy Birthday to you Uliana!!! Take our sincere congrats from the team of Lviv City Charitable Foundation and Pulmonary Hypertension Association on your birthday! We wish God’s blessing, health, faith,
Read more
Thanks to the support of EURORDIS-Rare Diseases Europe, stationary oxygen concentrators, tonometers, thermoses, power banks were purchased for people with a rare disease – pulmonary hypertension in Ukraine.
News 22 January 2024

Thanks to the support of EURORDIS-Rare Diseases Europe, stationary oxygen concentrators, tonometers, thermoses, power banks were purchased for people with a rare disease – pulmonary hypertension in Ukraine.

Thanks to the support of EURORDIS-Rare Diseases Europe, stationary oxygen concentrators, tonometers, thermoses, power banks were purchased for people with a rare disease – pulmonary hypertension in Ukraine. Thanks to
Read more
The Ministry of Finance, Take the Defence Position Towards the Rare Diseased Patients
News 22 January 2024

The Ministry of Finance, Take the Defence Position Towards the Rare Diseased Patients

Ministry of Finance of Ukraine, take the defence position towards the seriously ill patients. These are thousands of human lives. It is very difficult to find words when a person
Read more
“The Road Map for a PH Patient”- a Patient Meeting
News 15 January 2024

“The Road Map for a PH Patient”- a Patient Meeting

The PH patients meeting on the topic: “Roadmap for a patient with PH” has taken place. The meeting was held by the cardiologist, MD – Irina Zhyvylo and the cardiologist,
Read more
Merry Christmas!
News 15 January 2024

Merry Christmas!

We support people with a rare disease — pulmonary hypertension, we try to improve their quality of life. A child with pulmonary hypertension in Lviv region and a woman with
Read more
Oxygen Therapy at Home for 2  PH Patients
News 15 January 2024

Oxygen Therapy at Home for 2 PH Patients

We support people with a rare disease — pulmonary hypertension, we try to improve their quality of life. A child with pulmonary hypertension in Lviv region and a woman with
Read more
Congratulations on the New Year!
News 15 January 2024

Congratulations on the New Year!

“Sister Dalila” Charitable Foundation , Pulmonary Hypertension Association — PHURDA and the community of PH patients sincerely congratulate you on the coming New Year. We wish you and your family
Read more
We sincerely grateful to TRC “PERSYI ZACHIDNYI” for Enagement and Help
News 15 January 2024

We sincerely grateful to TRC “PERSYI ZACHIDNYI” for Enagement and Help

We sincerely grateful to TRC “PERSYI ZACHIDNYI” for the collection of plastic corks and informational support, popularization of the Cork for Life Campaign to support children and adults with a
Read more
The drug Bosentan 125 mg Pharmascience Inc., Canada, in the amount of 95,100 tablets (1,585 packages) was delivered by the manufacturer to Ukraine for the 2023 budget costs, already distributed by Medical Procurement of Ukraine.
News 10 January 2024

The drug Bosentan 125 mg Pharmascience Inc., Canada, in the amount of 95,100 tablets (1,585 packages) was delivered by the manufacturer to Ukraine for the 2023 budget costs, already distributed by Medical Procurement of Ukraine.

The drug Bosentan 125 mg Pharmascience Inc., Canada, in the amount of 95,100 tablets (1,585 packages) was delivered by the manufacturer to Ukraine for the 2023 budget costs, already distributed
Read more
We take daily efforts to support people with a rare disease – pulmonary hypertension, and provide them with vital medicines. Also, whenever possible, we give medicine for fever and pain for the military.
News 10 January 2024

We take daily efforts to support people with a rare disease – pulmonary hypertension, and provide them with vital medicines. Also, whenever possible, we give medicine for fever and pain for the military.

We take daily efforts to support people with a rare disease – pulmonary hypertension, and provide them with vital medicines. Also, whenever possible, we give medicine for fever and pain
Read more
Lviv Region – Budget 2024
News 10 January 2024

Lviv Region – Budget 2024

Lviv region – budget 2024 In 2024, the budget of the Lviv region provides for the treatment of people with pulmonary hypertension -1,480,000 UAH. We express our sincere gratitude to
Read more
National Health Service of Ukraine presented 2 years activity report to the public
News 22 December 2023

National Health Service of Ukraine presented 2 years activity report to the public

Recently, the National Health Service of Ukraine (NHSU) presented to the public and patient organizations a public report for 2 years of activity and told about further steps for the
Read more
A Joint Coordinative Meeting between EURORDIS and Ukrainian Rare Diseases Organizations
News 21 December 2023

A Joint Coordinative Meeting between EURORDIS and Ukrainian Rare Diseases Organizations

On December the 20th, a joint coordinative meeting between the representative of Eurordis-Rare Diseases Europe – Anna Boyko and representatives of patient organizations for rare diseases of Ukraine took place.
Read more
Children from PH Community have got presents from St. Nicholas
News 20 December 2023

Children from PH Community have got presents from St. Nicholas

This year, St. Nicholas the Wonderworker, through his mediators on earth, congratulated the children of the community of Charitable Foundation “Sister Dalila”, Pulmonary Hypertension Association with generous gifts. Children’s joy,
Read more
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“Pulmonary Hypertension in Children” – a patients  meeting for patients with PH!

“Pulmonary Hypertension in Children” – a patients meeting for patients with PH!

News 8 February 2024
Congratulations to Olha Tsap on her Birthday!

Congratulations to Olha Tsap on her Birthday!

News 8 February 2024
Infinite gratitude to Nova Poshta Humanitarian!

Infinite gratitude to Nova Poshta Humanitarian!

News 5 February 2024

PHURDALCCF Sister Dalila

«Ми ставимо перед собою багато цілей, та найголовніше, що хотілося б донести – немає безвихідних ситуацій і немає приречених людей – є чиясь байдужість. Але варто зробити маленький крок назустріч ближньому і завтрашній день обов’язково подарує надію»

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