#BOTTOM, or what will happen to orphan patients in 2020?
The draft of budget 2020 left thousands of patients with rare and chronic diseases without reatment.
-The briefing showed how humiliating for patients is the position of those who had cut the draft of budget 2020.
-To finance the lives of ones at the cost of the death of others is not be acceptable in European country.
– Early diagnosis and complex treatment improve the quality and prognosis of patients’ lives. It also helps to save state money.
Every action has a consequence, it must be remembered!