The Board of the Public Council of Lviv Regional State Administration, chaired by Andriy Bolyubash, considered the situation of sharply reducing in funding of vital care for patients with rare diseases in the Bill “On the State Budget for 2020” and decided to send letters to the  Committee on Health budget at Verkhovna Rada with proposals for increased funding.
There is a real threat to the lives of hundreds of patients with rare diseases in Ukraine, including Lviv.