State thinks: “it’s better to disable an orphan child, than to cure her!!!”

State thinks: “it’s better to disable an orphan child, than to cure her!!!”

An orphan, disabled child, Alina Serhiivna Didusenko, was ABANDONED TO HER FATE BY THE STATE.

WE REMIND YOU, THAT BACK IN OCTOBER 2015 THE DOH OF UKRAINE STATED THAT WITHIN UKRAINE THE CHILD WILL BE PROVIDED WITH CONSERVATIVE TREATMENT. HOWEVER, NOW WE ONCE AGAIN GOT THE CHANCE TO MAKE SURE IT WAS EMPTY WORDS AND PROMISES IN COST OF HUMAN LIFE. WE NOW SURE, THEY APPRECIATE NOTHING.

The draft program “Health” in 2016, which includes the issue of providing Didusenko Alina with vital medicines became THE CIRCUS ACT, WHERE OFFICIALS OF THE KYIV REGIONAL STATE ADMINISTRATION PLAYED THEIR ROLES. IN THE RESPONSES DATED 04/01/2016 №11-10/10038 AND 08.02.2016 №1-104-156 THEY STATED THAT AFTER PROGRAM APPROVAL THE CHILD WILL BE PROVIDED WITH THE MEDICINES, ESTIMATED DATE OF PURCHASE OF WHICH IS MARCH 2016.

THE MAIN ROLE IN THIS CIRCUS GOES TO ONE OF THE OFFICIALS OF KYIV REGIONAL STATE ADMINISTRATION HEALTH DEPARTMENT, WHO FOR THREE MONTHS IN NUMBER OF TELEPHONE CONVERSATIONS CLAIMED THAT THE DRAFT PROGRAM IS ALREADY SIGNED BY GOVERNOR.

However, it’s not true. Because of it, the draft program can’t be handed to Kyiv regional council for approval at the session.

This all happens despite calls to a government hotline №4813473 and complaints on government portal №4814897 and №5046297.

INDIFFERENCE OF THE STATE FORCED US TO CONTACT THE US, GERMAN, FRANCE, AUSTRIAN, POLISH EMBASSIES WITH A CRY FOR HELP !!!

THE US EMBASSY HAS RESPONDED TO OUR CALL AND SENT US TO NGO “PATIENTS OF UKRAINE”, WHICH REPRESENT PATIENTS INTERESTS AT THE HIGHEST POLITICAL LEVEL.

AUSTRIAN EMBASSY RESPONDED TO OUR CALL AND SENT AN APPEAL TO THE AUTHORIZED PERSON OF VERKHOVNA RADA OF UKRAINE ON HUMAN RIGHTS – LUTKOVSKA V.V.

WE LOOK FORWARD TO RESPONDS FROM THE OTHER EMBASSIES AS RAISING AN ISSUE OF ALINA DIDUSENKO CAN BECOME A PRECEDENT FOR THE STATE TO CHANGE THE RELATION TO ALL PATIENTS WITH PULMONARY HYPERTENSION IN UKRAINE AND APPROVAL OF NOT ONLY THE DRAFT PROGRAM “HEALTH”, BUT THE NATIONAL PROGRAM AS WELL!!!

WE BELIEVE THAT ACTIVE PARTICIPATION OF PATIENTS AND CIVIL SOCIETY, SUPPORTED BY THE EUROPEAN COMMUNITY MUST STOP THIS CIRCUS!!! AND LEAD TO POSITIVE CONSEQUENCES !!!