News
We keep you up-to-date about the happenings on the field of PH and rare diseases and provide you with healthcare-related news in Ukraine and beyond.

EURORDIS and Rare Diseases International met with Dr Tedros, Director-General of the World Health Organization
18 March 2019, Geneva – Today, Yann Le Cam, Chief Executive Officer of EURORDIS-Rare Diseases Europe, and Durhane Wong-Rieger, Chair
The last 12th session of the rehab program
The last 12th session of the rehab program “Social and expert support for PH patients”, the 1st part – physical activities
The rehab program for PH patients came to its end
The rehab program for PH patients came to its end. The last session was dedicated to panic attackes and how
Mira Dziubinska is sharing her emotions after rehab program
Mira Dziubinska is sharing her emotions after rehab program.
Tania Mykolaivna about rehab program
Таня Миколаївна is sharing her impressions about rehab program and Anna Mazurenko Children’s Health Center Thank You Tania!!! https://www.facebook.com/100008303044326/videos/2364226407197438/
Two containers for plastic caps were put in the facilities of kindergarten
Two containers for plastic caps were put in the facilities of kindergarten # 70. We thank Lviv City Council for
Help Yana breath!
Help Yana breath!!! Support from each of us is important for her. Ability to breath is given to us by
WE are rare, but We are not alone
WE are rare, but We are not alone! On February 28 is celebrated World Rare Disesse Day. Show your rare!!!
February 28 – International Rare Disease Day
February 28 is a special day -It’s International Rare Diseases Day#ShowYourRare. It is celebrated in 90 countries in the world.