We keep you up-to-date about the happenings on the field of PH and rare diseases and provide you with healthcare-related news in Ukraine and beyond.
The patients’ view with PAH becomes extremely positive
The patients’ view with PAH becomes extremely positive. Over the past decade, medical treatment for PAH has undergone a rapid European Association of Pulmonary Hypertension Discusses Christmas Debates
Pulmonary Hypertension European Association tells about Christmas Debates and Movement of Patients with Rare Diseases # Orphan Bell#RareDiseaseDay # orphan The pharmaceutical companies Acceleron Pharma and Fulcrum Therapeutics are working together
The pharmaceutical companies Acceleron Pharma and Fulcrum Therapeutics are working together to identify small molecules that can be used to Ukrainian Philanthropic Forum tells about “Christmas debates” and Orphan bell
Ukrainian Philanthropic Forum Український форум благодійників tells about “Christmas debates” and Orphan bell #орфаннийдзвін #RareDiseaseDay #орфаннийдзвін #PHUkraine #cfsisterdalila #pulmonaryhypertension #рідкіснізахворювання #cdkl5#легеневагіпертензія #мукополісахаридоз #туберознийсклероз #міопатіяДюшеннаБеккера #хворобаГоше #новинильвова #новиниУкраїни https://ufb.org.ua/sektor-blagodijnosti/blagodijni-organizacii/novini-v-ukraini-blagodijnix-organizacij.htm?id=5971&fbclid=IwAR3IVIH272BiuqDHcLStxZomXjMrZ-RZi779t7Fsy0CzMJqW7xLoVxFEYG4 “Christmas debates” on the Rare Disease Day website.
Information about “Christmas debates” on the Rare Disease Day website. #RareDiseaseDay #орфаннийдзвін #PHUkraine #cfsisterdalila #pulmonaryhypertension #рідкіснізахворювання #cdkl5#легеневагіпертензія #мукополісахаридоз #туберознийсклероз #міопатіяДюшеннаБеккера #хворобаГоше #новинильвова #новиниУкраїни https://www.rarediseaseday.org/event/ukraine/160?fbclid=IwAR3afJRSmKq05Mu25FWUxnjwKDw0T-Jagd5hm01BAWRshkUksKn6vOFRwh0#.Xi8GB9p2yy0.facebook PAH affects 15 to 50 people per million worldwide.
PAH affects 15 to 50 people per million worldwide.PAH can affect people of any age and is most common in Huray!! Orphan bell
Huray!! The protocol signatures are affixed now. The movement of the Orphan bell community is now officially on paper. Oksana We thank European Lung Foundation for publications of our activity.
We thank European Lung Foundation for publications of our activity. #РіздвяніДебати #PHURDA #cfsisterdalila #charityshop #PHUkraine #легеневагіпертензія #благодійність https://www.europeanlung.org/en/news-and-events/news/patient-organisation-round-up-and-goals-for-the-year-january-2020?fbclid=IwAR2cBWDI90hOKVbsSlMOrtINEOhaiTRFodRjUHsoHBH8r2I7XZt2CIWrFRY The informal part of the Christmas debates, without ties and jackets, was conducted by Iuliia Vinachevska
The informal part of the Christmas debates, without ties and jackets, was conducted by Iuliia Vinachevska, founder of the platform