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Pulmonary Hypertension Ukrainian Rare Disease Association - PHURDA CF Sister Dalila

CF Sister Dalila

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  • Українська
  • Русский
  • English
  •  
  • About us
    • Our history
    • Mission, vision, aims
    • Our team
    • Our membership
    • Our awards
    • Our partners
    • Founding documents
    • Activity reports
      • CF “Sister Dalila”
      • PHURDA
  • CF “Sister Dalila”
    • They need help
    • You helped them
    • We remember them
    • How to help
    • To become a ward
    • Successful stories
  • About PH
    • Classification and WHO functional class
    • What is PAH?
    • What is CTEPH?
    • Symptoms
    • Diagnosis
    • Treatment
    • Therapies
    • ESC/ERS Guidelines
    • Research
    • PH in children
    • PH and pregnancy
  • Get involved
    • Volunteering
    • Awareness campaigns
      • World PH Day
      • PH Awareness month
      • Rare Disease Day
      • Donor Day
      • Previous campaigns/activities
        • Early diagnosis
        • Music for life
    • Advocacy work
      • Expert groups at Ministry of Health
      • Legal support
      • Round tables
    • My PH Library
  • Projects
    • Butterfly in Blue
      • Fashion show
      • Beauty salon
    • Cork for Life
    • O2Kids
    • St. Nicolas Day
    • For coffee
    • Charity Shop
    • Rehabilitation program
    • Fundraising projects
  • News and events
    • Conferences
      • First patient meeting
      • Christmas debates
      • 5 years of activity
    • Mariposa Journal
    • News
    • Support groups for PH patients
  • Contact Us
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15 August 2022

dobro.ua

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  • Mariposa Journal (4)
  • News (804)
  • Rare Disease Day (2)
  • They need help (26)
  • We remember them (8)
  • World PH Day (9)
  • You helped them (1)

Recent post

  • “Pulmonary Hypertension in Children” – a patients meeting for patients with PH! 8 February 2024
  • Congratulations to Olha Tsap on her Birthday! 8 February 2024
  • Infinite gratitude to Nova Poshta Humanitarian! 5 February 2024
  • The Cork for Life Campaign! 5 February 2024
  • Fine and sincere gratitude to the school staff and students of the Lyceum 52! 5 February 2024
  • A memorandum of Cooperation between the Association of Pulmonary Hypertension and the Lviv Regional Center for Disease Control and Prevention (Lviv Center for Disease Control and Prevention of the Ministry of Health) 5 February 2024
  • Unlimited and sincere gratitude to the school staff and students! 26 January 2024
  • Happy Birthday to You Uliana Malofii! 22 January 2024
  • Thanks to the support of EURORDIS-Rare Diseases Europe, stationary oxygen concentrators, tonometers, thermoses, power banks were purchased for people with a rare disease – pulmonary hypertension in Ukraine. 22 January 2024
  • The Ministry of Finance, Take the Defence Position Towards the Rare Diseased Patients 22 January 2024

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Нещодавні новини

“Pulmonary Hypertension in Children” – a patients  meeting for patients with PH!

“Pulmonary Hypertension in Children” – a patients meeting for patients with PH!

News 8 February 2024
Congratulations to Olha Tsap on her Birthday!

Congratulations to Olha Tsap on her Birthday!

News 8 February 2024
Infinite gratitude to Nova Poshta Humanitarian!

Infinite gratitude to Nova Poshta Humanitarian!

News 5 February 2024

PHURDALCCF Sister Dalila

«Ми ставимо перед собою багато цілей, та найголовніше, що хотілося б донести – немає безвихідних ситуацій і немає приречених людей – є чиясь байдужість. Але варто зробити маленький крок назустріч ближньому і завтрашній день обов’язково подарує надію»

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