The “First Patient Meeting” began at the Lviv Regional State Administration, where a solemn signing of the Memorandum of Cooperation between the Public Organization “Pulmonary Hypertension Ukrainian Rare Disease Association” (PHURDA) and the Norwegian Association of Pulmonary Hypertension (PHA Norway) took place.
On January 17th 2020, a meeting “Christmas debates” was organized in the premises of the CF “Sister Dalila” organized by the movement of the orphan community “Orphan Bell” with the participation of patients, representatives of patient organizations, local and regional authorities, doctors, public activists.
It was not just a report of 5 year activity in the theme of St. Andrew’s evenings, but a meeting with those who in hard times believed and was there for us.
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