«Eurordis» is a non-governmental alliance that unites patient organizations and people working in the field of rare diseases in order to improve the life quality of all people living with rare diseases in Europe.

February 24 was the first day of the Symposium entitled: “Multi-stakeholder Symposium on Improving Patient Access to Rare Disease Therapies” ( “Access of patients with rare diseases to therapy”), during which Yann Le Cam, Eurordis, Philippe de Backer, MEP, Vytenis Andriukaitis, European Commissioner for health and food products quality, highlighted that patient organizations, physicians, scientists, pharmaceutical companies and representatives of public authorities should unite to ensure effective implementation of the right to treatment by patient with rare disease (namely, access to treatment, taking to account patient’s opinion on medicines pricing, state compensation of medicines cost, expertise of pricing in favor of accessibility for patients with rare diseases).