Новини

The only way out for Olena is a portable oxygen concentrator which will allow her to move. The cost of the device is 103 950 UAH. Olena and her family do not have such funds. On dobro.ua we collect part of the required amount

News

14/12/2020
The diary PHuman (given to us by PHAEUROPE) can help a patient with pulmonary hypertension to plan his treatment.
Your everyday work on improving of your health state is large percent of treatment success. The diary PHuman (given to us by PHAEUROPE) can help a patient with pulmonary hypertension to plan his treatment.
14/12/2020
Important information concerning receiving drugs from pulmonary hypertension for the PH patients of Lviv and Lviv region
Important information for the PH patients of Lviv and Lviv region! Lviv regional clinical hospital has reacted to the request of Rare Disease Pulmonary Hypertension Association (PHURDA) and as of 01.01.2021 drugs will be delivered once every three months for the people, suffering from pulmonary hypertension.
14/12/2020
Many years ago PHA Europe started the project O2Kids for pulmonary hypertension (PH) problem awareness in kids
Many years ago PHA Europe (Pulmonary Hypertension Association Europe) started the project O2Kids for pulmonary hypertension (PH) problem awareness in kids. Khrystynka Makarchuk, the patient under guardianship of CF “Sister Dalila”, became the face of this project.
14/12/2020
Help CF “Sister Dalila” in fundraising for buying an oxygen concentrator
Help CF “Sister Dalila” in fundraising for buying an oxygen concentrator to a PH patient to have oxygen therapy.
04/12/2020
Before Christmas and New Year dreams come true, especially when to speak of dreams aloud
Before Christmas and New Year dreams come true, especially when to speak of dreams aloud. In such a way a dream of CF “Sister Dalila” and the beauty studio «Butterfly in blue» came true. We have received a present!
03/12/2020
CF “Sister Dalila” announces a festive charitable event “Hope for Life!” to support our PH patients under guardianship
CF “Sister Dalila” announces a festive charitable event “Hope for Life!”, dedicated to coming holidays and New Year to support our PH patients under guardianship.
03/12/2020
EMA had a workshop on the theme: “Support for Development of Orphan Medicines” on November 30, 2020
EMA had a workshop on the theme: “Support for Development of Orphan Medicines” on November 30, 2020. The workshop underlined that patients with rare diseases, shall receive the same treatment quality as other patients.
01/12/2020
CF "Sister Dalila" needs help of volunteers!
We need help of volunteers for sorting of plastic corks! The time: 10:00-18:00 o’clock – Monday-Friday 10:00-15:00 o’clock - Saturday Please, come and help a time comfortable to you to sort plastic corks from the waste: metal corks, batteries, plastic that are not accepted for recycling.
26/11/2020
CF “Sister Dalila” offers wonderful cloth masks for a charitable donation
CF “Sister Dalila” offers wonderful cloth masks, received from PHA Europe with PH logo for a charitable donation starting of 100 hryvnyas.
26/11/2020
CF “Sister Dalila” needs help of volunteers for sorting of plastic corks
CF “Sister Dalila” needs help of volunteers for sorting of plastic corks. The date: on the 26th -28th of November. Please, come and help a time comfortable to you to sort plastic corks from the waste: metal corks, batteries, plastic that are not accepted for recycling.
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