{"id":5498,"date":"2022-09-27T09:26:45","date_gmt":"2022-09-27T07:26:45","guid":{"rendered":"https:\/\/poryatunok.info\/uncategorized\/mariposa-n-15\/"},"modified":"2022-09-27T09:35:41","modified_gmt":"2022-09-27T07:35:41","slug":"mariposa-n-15","status":"publish","type":"post","link":"https:\/\/poryatunok.info\/en\/news-and-events\/mariposa-journal\/mariposa-n-15\/","title":{"rendered":"Mariposa n. 15"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><p>[vc_row row_space=&#8221;remove_padding&#8221;][vc_column][gva_block_heading title=&#8221;Mariposa n. 15&#8243; align=&#8221;align-left&#8221;][\/gva_block_heading][vc_column_text]<\/p>\n<p style=\"text-align: justify;\">In 2015 the LCCF \u201cSister Dalila\u201d&amp; PHURDA carried out a number of activities aimed at supporting PH patients and protecting their rights. We organized a flashmob involving children, to support patients with rare diseases, near Lviv City Hall.<!--more--> The event was dedicated to International Rare Disease Day. A football match dedicated to World PH Day was held between FC \u201cKarpaty\u201d and FC \u201cChornomorets\u201d in Lviv. This year was marked by very important changes for PH patients in Lviv Region. The Lviv Regional Registry of PH patients and the Lviv Regional Registru of patients suffering from rare diseases were approved. During the LVIV REGIONAL COUNCIL\u2019s session there was approved the \u201cRegional program of improvement of medical care for PH patients in Lviv region for 2015-2017\u201d. The regional program provides 14 patients in the Lviv region with expensive PH drugs, namely \u201cRevatio\u201d and \u201cVentavis\u201d for free. In September 2015 at the ANNUAL PH EUROPEAN CONFERENCE (APHEC) in Spain PHURDA was voted as Member of PHA Europe.<\/p>\n<p>[\/vc_column_text][vc_btn title=&#8221;Download Mariposa n. 15&#8243; color=&#8221;danger&#8221; link=&#8221;url:https%3A%2F%2Fwww.phaeurope.org%2Fwp-content%2Fuploads%2FPHAE-MariposaJournal-2015-winter-n15-1.pdf|title:Mariposa%20n.%2015|target:_blank&#8221;][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>[vc_row row_space=&#8221;remove_padding&#8221;][vc_column][gva_block_heading title=&#8221;Mariposa n. 15&#8243; align=&#8221;align-left&#8221;][\/gva_block_heading][vc_column_text] In 2015 the LCCF \u201cSister Dalila\u201d&amp; PHURDA carried out a number of activities aimed at supporting PH patients and protecting their rights. We organized a flashmob involving children, to support patients with rare diseases, near Lviv City Hall.<\/p>\n","protected":false},"author":1,"featured_media":5495,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[50],"tags":[],"class_list":["post-5498","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-mariposa-journal"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Mariposa n. 15 - Sister Dalila<\/title>\n<meta name=\"description\" content=\"\u0423 2015 \u0440\u043e\u0446\u0456 \u0411\u0424 \u00ab\u0421\u0435\u0441\u0442\u0440\u0438 \u0414\u0430\u043b\u0456\u043b\u0438\u00bb \u0442\u0430 PHURDA \u043f\u0440\u043e\u0432\u0435\u043b\u0438 \u0440\u044f\u0434 \u0437\u0430\u0445\u043e\u0434\u0456\u0432, \u0441\u043f\u0440\u044f\u043c\u043e\u0432\u0430\u043d\u0438\u0445 \u043d\u0430 \u043f\u0456\u0434\u0442\u0440\u0438\u043c\u043a\u0443 \u043f\u0430\u0446\u0456\u0454\u043d\u0442\u0456\u0432 \u0437 \u041b\u0413 \u0442\u0430 \u0437\u0430\u0445\u0438\u0441\u0442 \u0457\u0445 \u043f\u0440\u0430\u0432.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/poryatunok.info\/en\/news-and-events\/mariposa-journal\/mariposa-n-15\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Mariposa n. 15 - 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