Новини

CF “Sister Dalila” needs help of volunteers for sorting of plastic corks. The date: on the 26th -28th of November. Please, come and help a time comfortable to you to sort plastic corks from the waste: metal corks, batteries, plastic that are not accepted for recycling.
PH Portugal will hold S+S Walking of Hope on November 27, 28 and 29. However, since we are in the middle of the Awareness Month for Pulmonary Hypertension, PH Portugal wanted to mark it symbolically and organizes S+S Walking of Hope on November, 27, 28 and 29.
CF “Sister Dalila” continues receiving letters to Saint Mykolay from children. Maybe, do you have a possibility, desire and time to take part in this good act?
PH Association of Slovenia has made a survey among the patients of Europe on the theme: “COVID-19 is lethal also for younger people”.

They need help

Victoria Burbura
23/05/2014

Hello to all open-hearted people! My name is Victoriya. I am from Lviv, Ukraine. I am the mother of two wonderful daughters: six and one and a half years old. On giving birth to my second child, I started feeling myself bad, at first I thought it would improve but it didn`t.

Once when I was walking in the street with my chldre I fainted. I went to the doctor and heard a terrible diagnosis - idiopathic pulmonary hypertension, a rare disease," you are one in a  million", - the doctor said. The diagnosis became my complete surprise because all my life I considered myself quite a healthy person. Now I am learning to live a new life: pills every day, ihalation, no physical exercises and even walking. The disease leaves no choice when being untreated. I`ll live just a few years. Unfortunately the effective treatment is very expensive and longlasting. My monthly breath costs 34885 UAH. My kids do not let me grieve and fall into dispair. I want to live for them for their future.

I must ask for help in ind and compassionate people as I have no other way out. Without such remedies as Ventavis and Seldynafil, I will be short of breath and I will die,nevertheless my great desire to live. 

At this time, Victoria receives free treatment under the regional program to improve medical care for patients with pulmonary hypertension in the Lviv region in 2015-2017 years.