Новини

CF “Sister Dalila” needs help of volunteers for sorting of plastic corks. The date: on the 26th -28th of November. Please, come and help a time comfortable to you to sort plastic corks from the waste: metal corks, batteries, plastic that are not accepted for recycling.
PH Portugal will hold S+S Walking of Hope on November 27, 28 and 29. However, since we are in the middle of the Awareness Month for Pulmonary Hypertension, PH Portugal wanted to mark it symbolically and organizes S+S Walking of Hope on November, 27, 28 and 29.
CF “Sister Dalila” continues receiving letters to Saint Mykolay from children. Maybe, do you have a possibility, desire and time to take part in this good act?
PH Association of Slovenia has made a survey among the patients of Europe on the theme: “COVID-19 is lethal also for younger people”.

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TRK-Lviv, the program "Good morning, Lviv!", ether about campaign "Cork for Life" in support of patients with pulmonary hypertension
30/08/2015

Guests of the program: Head Lviv CF of "Sister Delilah" and NGO "Association of Ukraine rare disease - Pulmonary Hypertension" - Oksana Kulish, lawyer of CF of "Sister Delilah" and NGO "Association of Ukraine rare disease - Pulmonary Hypertension" - Andrew Guley, acting director of Lviv center of social services for families, children and youth - Oksana Rubai told about the campaign "Cork for life", that brings people together for the care of patients with pulmonary hypertension. The campaign consists in mass collecting of plastic corks from bottles, yoghurt, pens, creams, medicines by residents of city and tranportation it to the recycling company. Funds raised of collecting corks is transfered by the company to account of CF of "Sister Delilah" for the purchase of a viable medicines for patients with pulmonary hypertension.

In addition, it was stressed that developed by DOH LRSA "The program of improvement of medical care of patients with pulmonary hypertension in the Lviv region in 2015-2017 years" at present, is on the way of getting approval of the Standing Committee on the budget of Lviv regional council and will be added for consideration and approval at session of the Lviv regional council by a vote of MPs. Which means the life of patients with pulmonary hypertension in the Lviv region depends on voting 119 MPs of the Lviv regional council !!!

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