The only way out for Olena is a portable oxygen concentrator which will allow her to move. The cost of the device is 103 950 UAH. Olena and her family do not have such funds. On dobro.ua we collect part of the required amount


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On Tuesday, the 16th of December in the St. Paraskeva Medical Centre There Took Place a Conferene on Echocardiography

On Tuesday, the  16th of  December  in the St. Paraskeva Centre(Lviv) conference hall there took place  a session of the Lviv branch of the Association of Echocardiography. The theme of the conference is  "News of the European Congress of Echocardiography and visualization of blood vessels and the heart."  The speaker: Nelia Oryshchyn.

The Charitable Foundation of "Sister Dalila" was also invited to the conference. The conference was  for doctors, but there we raised the the question of the possibility of running a common conference on February 28, 2015 on "Rare Diseases in Cardiology" dedicated to the Day of rare diseases. Our initiative was supported by Dr. Yuriy A. Ivaniv.

February 28 is  the day that should be special for everyone who has the relation to  rare diseases, because despite being are there are so many of those people affected. "Day by day, hand in hand" patients are fighting  for life against the disease .

 EURODIS – European Rare Disease Organisation offers to unite the efforts of all of us.

We are happy to listen to your suggestions for rare diseases Day on February 28, 2015. Together  with you we can bring your ideas into life in Ukraine!

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