On February 19, 2015 in Lviv, in St. Paraskevia Medical Center there has taken place a conference to the the Rare Disease Day. The conference had been run by Juriy Andrijovych Ivaniv, the doctor of medical sciences and the professor; by Nelya Dmytrivna Oryshchyn, the candidate of Medical Sciences. The Venue is symbolic, as there is The Centre for Rare Heart Diseases on the basis of St. Paraskevia Medical Center.
The theme of the conference is "Myocardial infarction in young people."
The Opening ceremony began with a video clip https://www.youtube.com/watch?v=N7p6JmDLW2E about rare diseases, shot by EURODIS.
Lviv City Charitable Foundation of "Sister Dalila" saw the solidarity of doctors who raising their hands up supported people with rare diseases. We stressed that patients with rare diseases constitute a significant percentage of society.
The given conference has once again put the emphasis on the importance of cooperation between physicians, community organizations, caregivers, patients and their families in the direction of the state provision of prevention of rare diseases and the provision of medical care and improvement of the lives of people with rare diseases.