The only way out for Olena is a portable oxygen concentrator which will allow her to move. The cost of the device is 103 950 UAH. Olena and her family do not have such funds. On dobro.ua we collect part of the required amount
Joint Activity of the Charitable Foundation of "Sister Dalila"and "TB Fruit"to the Rare Disease Day 2015
Joint activity of the Charitable Foundation of "Sister Dalila"and "TB Fruit" dedicated to the Rare Disease Day 2015, conducted in Western Ukraine, Lviv city.
"The Program on Improving the Medical Care for Patients with Pulmonary Hypertension in Lviv Region for 2015"
According to the program called "The Program on improving the medical care for patients with pulmonary hypertension in Lviv region for 2015", patients with pulmonary hypertension of Lviv region should be provided with the necessary treatment. However, the appropriate provision will be possible under the condition that your data is recorded in the register of the Healthcare Department of Lviv Regional State Admininistration.
On January 30, 2015 Lviv region was visited by the Minister of Healthcare of "Ukraine - Alexander Kvitashvily
During the trip the Minister met with the medical community, with the leaders of the leading medical institutions of the region, with the Academic Council and students of Danylo Halytskiy National Medical University of Lviv and also Mr. Kvitashvily met with the representatives of NGOs and trade unions.
Charitable Foundation of "Sister Dalila" Suspends Raising of Funds for Rozmaritsyn Myhailo`s Transplantation
Giessen Clinic is not ready to accept Myhailo Rozmaritsyn. Taking this into account, we have to stop raising funds for transplant.
Lviv Charitable Foundation of "Sister Dalila" will Support Rare Disease Day in February
In support of Rare Disease Day Lviv Ccaritable Foundation of "Sister Dalila" will post banners with the Ukrainian child suffering from a rare disease - Pulmonary Hypertension. There will be a flashmom in Lviv and a conference of doctors on "Rare Rare Diseases in Cardiology", a TV programme "Give Hope" about people living with rare diseases and the logos of Day of Rare Disease Day and Charitable Foundation of "Sister Dalila" will be placed in a batch of Ukrainian juice products.
14-17 January, 2015 PHA Europe Conference in Norway, Oslo in Support of the Newly Established PH Associations
On the14-17th of January 2015 due to the assistance of the European Association of PH in the Kingdom of Norway, Oslo there was run a conference in support of the newly establisherd associations of PH, in which representatives of various countries, namely Ukraine, Macedonia, Belarus, Serbia, Croatia and Russia took place . At the conference we discussed the problem of pulmonary hypertension and possible ways of their solution in the countries where the new associations will be established.
Clinical study of the effectiveness of Mecitentan and Victoria Burbura
Clinical study of the effectiveness of Mecitentan and Victoria Burbura. Christmas is a holiday during which miracles may happen. That's what happened to Victoria, the patient of LCCF of “Sister Dalila”. She is now included in the clinical trial of macitentan, an effective drug to treat pulmonary hypertension. http://en.wikipedia.org/wiki/Macitentan
The European Association of Pulmonary Hypertension and Lviv City Charitable Foundation of "Sister Dalila" Have Held a New Year`s Campaign "Thank you, Lviv Citizens"
The European Association of Pulmonary Hypertension and Lviv City Foundation of "Sister Dalila" Have Held a New Year`s Campaign "Thank you, Lviv Citizens". The aim of the campaign was: to thank for the sincerity, kindness and humanity that we felt from the people who supported our patients, helping them to buy a breath of air inspite of difficult times in Ukraine. Along with words of gratitude, we greeted Lviv citizens with Happy New Year and Merry Christmas!
Semen Chrystyna Olehivna is a candidate of medical sciences, a lecturer
Semen Chrystyna Olehivna is a candidate of medical sciences, a lecturer. The place of work is Danylo Halytskiy National Medical University of Lviv, Department of Internal Medicine -Propedeutics №2 (based on the Lviv Railway Hospital, Lviv city, 5 Ohijenka street).
The Drugs Ventavis were bought to Victoriya Burbura by the foundation of
The Drugs Ventavis were bought to Victoriya Burbura by the foundation of " Sister Dalila"(December16, 2014). The medicines will be enough for 1 month. The total cost is 9211 UAH, 50% are covered by the hospital where Victoriya is watched and another 50% of the total cost are covered by the Charitable Foundation of "Sister Dalila".