Lviv City Charitable Foundation of "Sister Dalila" with the assistance of Lviv City Council, namely Lviv City Center of Social Services for Families, Children and Youth, represented by Oksana Andriivna Rubai, managed to implement a project to the Day of Rare Diseases.
The project aims to overcome the informative barrier in orphan nosology, such as pulmonary hypertension.
Rare Disease Day was first held by the European Alliance for Rare diseases - EURODIS, February 29, 2008.
During February 2015 on the territory of Lviv city there are citylights depicting a child suffering from pulmonary hypertension, with the inscription of "Pulmonary Hypertension - when the air is left aside."
Each patient interprets the concept of his or her illness in different ways, but the matter is the same –there is always lack of oxygen, resulting in shortness of breath, bluish limbs, fast physical fatigue, loss of consciousness.
This girl, like hundreds of others, needs the attraction of attention of the state and the surrounding.
It should be noted that a person without oxygen can live 5-7 minutes, and PH patient can can live up to 3 years without drugs.
Here are street addresses where you can see our citylights:
1 Horodotska Street, 42
2. Soborna Square, opposite №7
3. Bandera Street, 26
4. Lypneva Square, 4
5. Kropyvnytskiy Square - intersection with Sheptytskiys Street