Is it safe for PH patients to go to work? Adults with PH should try to work remotely whenever possible. You should consider the infection rate in your community, health of household members, financial situation and job type if you decide to go into your workplace.
Flu vaccine for PAH Patients. I have PAH. Do I need the flu vaccine? Yes. All PAH patients should get the flu vaccine.
EURORDIS Winter School. Learn more about rare disease research! Take the free online modules by the link below.
Recent clinical and laboratory studies have shown that cloth masks or face coverings can provide an extra layer of protect to prevent respiratory and aerosol droplets from traveling through the air to other people.
Symptoms of COVID-19 can be difficult to distinguish from your PH and from other viral infections, especially during cold and flu season. You know your symptoms and PH best.


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Lviv Charitable Foundation of "Sister Dalila" will Support Rare Disease Day in February

       In Ukraine,  Lviv City Charitable Foundation of "Sister Dalila" will run the  following activities to the Rare Disease Day  http://www.rarediseaseday.org/

1) During the whole February in Lviv city, the cultural capital of Ukraine there will be posted banners depicting the Ukrainian child suffering from a rare disease - Pulmonary Hypertension.

2) 22 February 2015 in Lviv there will be a flashmob. The participants of flashmob will be   volunteers and  patients of Charitable Foundation of "Sister Dalila" and all others who have reference to rare diseases.

3) 26 February 2015 there will be run a common conference of doctors and Lviv City Charitable Foundation of "Sister Dalila"  on "Orphan Diseases in Cardiology”

4) The Ukrainian manufacturer of juices in a batch of products will place stickers of logos of  Day of Rare Disease Day and Charitable Foundation of "Sister Dalila"

5) On Lviv TV Channel “TRK Lviv” there will be broadcasted a programme "Give Hope" on rare diseases or people living with rare diseases.

        The purpose of all kinds of  these activities is to draw public`s attention to people with rare diseases. Although there are few of them  but if they unite, they will make a significant persentage of the society.

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