CF “Sister Dalila” needs help of volunteers for sorting of plastic corks. The date: on the 26th -28th of November. Please, come and help a time comfortable to you to sort plastic corks from the waste: metal corks, batteries, plastic that are not accepted for recycling.
PH Portugal will hold S+S Walking of Hope on November 27, 28 and 29. However, since we are in the middle of the Awareness Month for Pulmonary Hypertension, PH Portugal wanted to mark it symbolically and organizes S+S Walking of Hope on November, 27, 28 and 29.
CF “Sister Dalila” continues receiving letters to Saint Mykolay from children. Maybe, do you have a possibility, desire and time to take part in this good act?
PH Association of Slovenia has made a survey among the patients of Europe on the theme: “COVID-19 is lethal also for younger people”.


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EURORDIS Winter School, April 12-16, 2021

EURORDIS Winter School.

The EURORDIS Winter School on Scientific Innovation and Translational Research consists of one week training in April, and the training modules below, which are available for anyone to use for free.

The aim of the training is deepening patient representatives’ understanding of how pre-clinical research translates into real benefits for rare disease patients.

The training equips participants with knowledge and skills so they are empowered to effectively participate in discussions with the researchers, policy makers and companies responsible for research or research infrastructures.

Expert speakers and researchers from across Europe deliver the face-to-face training sessions. The topics covered include the history of genetics, diagnostics, new technologies in gene therapy and drug repurposing.

The next EURORDIS Winter School will take place on 12-16 April 2021. Applications for this training are not open yet.

Learn more about rare disease research! Take the free online modules by the link below. Each module includes a lesson and quiz. These online modules are from the first edition of the EURORDIS Winter School.

The information was taken from EURORDIS site: (https://openacademy.eurordis.org/winterschool/)

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