The Pulmonary Hypertension Association of Europe reports and warns about the COVID-19 coronavirus

At the office of CF “Sister Dalila” there was held a workshop of making a leaflet

The Ukrainian Medical Society in Lviv became a platform for communication on orphan diseases with the active assistance of the head of the medical society Oleh Duda.

The meeting of the Commission for Social Protection of the Population and ATO Participants at the Lviv Regional State Administration was held. During the meeting, we, the PH Urda representatives, together with members of the Commission, heard a report from the LODA Department of Social Protection for 2019.

On Rare Disease Day - February 29th The Orphan Bell movement got its own logo